just diagnosed and so scared

FormerMember
FormerMember
  • 2851 replies
  • 322 subscribers
  • 297025 views

Hello

I've just been diagnosed with invasive ductal cancer grade 3 triple negative I'm so scared is anyone going through the same? 

  • If I lived near you I would come round and make you something for now or for later when you feel like it more. Sending love.xxx

  • You are all so lovely . Some great ideas , maybe I should get a box of things I can eat during this period .  Thanks for the suggestions. I know feeling like this will pass by the end of this week but it’s just so hard . I have never been great when I am ill. I may also ring my GP tomorrow as I couldn’t sleep last night and that has made things a whole lot worse today .  Love to you all xxx

  • Hi Harleybear

    So sorry to hear that you and your partner are struggling at the moment. It might be a good idea for your partner to join the family and friends forum where he can get support from people whose loved ones are going through cancer.

    Would you think of talking to your oncologist about how much you are struggling with chemo and see if they could change your next lot of treatments to fortnightly?

    As for the phone call it might not be bad news, it could be that they know how anxious you are so they’re letting you know your results quickly. I had to have a CT Scan last December due to a possible blood clot and they let me know the know the results about half an hour after I,had the scan and it was good news, there was no clot so I was able to go home straight away. I then got a phone call the day after while undergoing treatment to say that my tumour had reduced from 16mm to 3mm and that was after only three treatments.

    Easy for me to say I know and it doesn’t feel like it right now but you are stronger than you think. I’ve seen you give support to others in your situation even though you haven’t been feeling the best.

    Sending you a big hug..

    Daisy53 xxx

    Community Champion Badge

  • Hi Daisy thanks for your support . I confess to having a wry smile at the thought of my partner joining an online forum , he is a complete techno phobe, doesn’t even have a mobile .  However I could suggest he rings a support line . 

    My chemo is currently every 3 weeks and have one more cycle of EC then I believe it is going to weekly docetaxol which I am terrified by having read some side effect horror stories about this drug .  
    I just need to get to day 11 then I think will start to feel better again .  Xxxx

  • FormerMember
    FormerMember

    Hello How is everyone doing today ? Harleybear are you feeling better today ?  I have 2nd lot of EC Thursday feeling slightly anxious just had bloods done etc xx

  • Morning Key82,

    Hope all goes well for you on Thursday....we always feel a bit anxious before a treatment, but they do give so much help to alleviate our stress and side effects.....but still not the way we would wish to spend our day that's for sure......will be thinking of you, and yes

    Harleybear, how are you today, any news yet. Hope so to put your mind at rest...Hope you have a better day today....

    Love and hugs to everyone.....xxxx

  • Hi Key doesn’t the chemo sessions come round quickly . I am now on day 8 , hospital rang today to check on my cold said I am most vulnerable for next 2 days . Still feel rotten ,  Hopefully it will improve soon .  
    Don’t  be scared about the 2nd one it will be fine . I think if I had not had this cold I may have been a bit better but it has floored me .     I will be thinking of you . 
    one of my neighbours just came round bought me some flowers I didn’t even know they knew . My partner is a bit of a gossip !!! I think maybe he needed to tell someone as he doesn’t do technology and is 12 years older than me .  I don’t blame him for telling them it was actually nice just having a normal conversation xxxx

  • Hi Key

    May I ask do they do bloods couple of days before usually? And do you get told results before the chemo? 

    When you got your first lot of chemo.. .what do you do before and during? Just trying to get my head around...do u take meds upfront before the chemo eg anti sickness etc? Did your taste in food change?

    Do you also get told before you leave the next Chemo session is?

    Sorry  so many questions.

    Do you keep a treatment diary?

    C x

  • FormerMember
    FormerMember in reply to Claud272

    They have taken my bloods 2 days before each and she said I would only hear if there is a problem, 1st lot I was low in vitamin D so am on tablets. I had anti sickness before treatment and meds to take home. 

    I've been given dates for all my Ec treatments up to 30th December then I guess I will receive my weekly appointments. 

    I have a book to write in as feel too much to remember. 

    How long until your treatment will start ? 

    Hope your recovery ok xx