After effects of Zometa infusions and other meds

Thank you for sharing your experience. It's completely understandable to be concerned about new side effects, especially after a Zometa infusion. The shaking, stiffness, and rapid heartbeat you're describing sound very distressing.

It's a great idea to check in with your medical team about any symptoms you're experiencing. They can help determine if it's a normal reaction to the medication or if something else is going on. This community is here for you, so please keep sharing as you navigate these challenges. Wishing you all the best.

Hello I’m sorry to hear about your side effects. It’s hard to know what’s what with these medications. I’ve been having Zometa infusions for 2 years 2 more infusions to go I am also on Exemestane. From what  you describe it sounds more like Exemestane from my experience. The only side effects I’ve had from Zometa have been flu like and fatigue. I have been coping reasonably well on Exemestane for a year but the hot flushes where I’m drenched in sweat have increased considerably to every 40 minutes for the last few months. Horrible. I hope your side effects settle soon. Best wishes 

I have had 5 zometa infusions and unlike some I react every time. The reaction starts about 12 hours after the infusion and consists of flu like aching, feeling shaky and tired. Lasts for about 24 hours then goes.

I had my first one in with a chemo infusion, so felt bad anyway, by my second one I was just taking letrozole and the other three I’ve had have been while I’ve had abemaciclib as well. I expect my final  one next January will be the same and I will make sure I don’t have to do much the day after. 
I’ve never had anything that I felt was from it as much as 3 weeks later. I do have times when I feel randomly a bit worse/ better and I just assume it’s the medication or a transient illness. Doesn’t mean it couldn’t happen though as you describe!

All the best with this xx

Thanks all. I plan to contact my oncologist to see if a short break from my meds might help. 

My husbands first Zometa was awful reaction, pain in every joint in his body, which lasted about 3 days. Hes had 3 Zometas now & each one the side effects have eased, but he still as joint pain & stiffness. Lasting about 24/48 hrs. I hope you get answers to your side effects