Cold cap help!!

Hi, I'm assuming that this is an individual hospital trust policy because I used a cold cap at my first treatment last Friday. The only difference was that I was asked to take the chin strap with me and bring it to each treatment.  

Yeah my hospital arnt using it due to covid but I was referred privately via the NHS in the end and got to cold cap however went on to lose 100% of my hair unfortunately. It doesnt work for everyone but good luck xxx

Thank you for your replies. Im gutted I can’t even give it ago. X

It's awful when you dont even get the option to try but just concentrate on your treatment and recovery going forward. I had waist length hair b4 my diagnosis and pinned my hopes on cold capping. That's all I started to focus on but once the hair went you will realise that you just want to get the treatment done and move on someway. All the best xx

Thank you. I keep telling myself there’s bigger things than hair, it’ll grow back. I’ve never really experienced true anxiety before but this journey over the last few weeks has been the most nerve wracking time of my life. Thank you for your kind words, I wish you a speedy recovery. X

Keep posting and let us know how your treatment goes.  You are never alone. Shout scream the lot. You will have crap days but you will get through it. Take care too xx

Tried the cold cap twice. Couldn't get on with it. It was causing me too much anxiety so decided to stop. My long hair was coming out anyway very rapidly so I felt it just wasn't working. Felt so much better after I had made the decision not to continue. Thought I would be mortified losing my hair. Always warn it long. However, it was strangely liberating! Very little left now Although have not shaved as I like a few bits sticking out from under my scarves or hats. Also invested in a wig for ' going out' not that I'm doing much of that currently but living in hope. LOL. So having lost my hair... It's ok. I'm focused on getting through and coping with the various SE. I'm looking forward to it growing back and experimenting with assorted hair styles I've never had the courage to try on the past. Best wishes for your treatment. Be kind to yourself, you've got this, it's do-able.

Hi.
I had chemotherapy last July and my hospital provided the cold cap.

I tried it twice, but sadly for me, it didn't work. I started losing my long hair anyway.  I decided to then cut it short and eventually just shave it off for practicality.  It did depress me to begin with, but eventually found it liberating.  I just kept reminding myself that at least, it will grow back.

I then tried to focus on the other more important issues instead.

Now I can observe the way it is growing back and find it interesting.  I have many different headscarves to wear, which is fun.

I hope this helps.

Take care .x

Thank you so much xx