Aching bones

FormerMember
FormerMember
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I was diagnosed with HER2+ BC in December 2020.  Have completed 3 doses of EC and am now onto weekly Herceptin and Taxo.

I've got far fewer side effects (Hurrah) but am suffering from horrendous headaches,  which paracetamol deals with,  and horrible aching leg bones at night.  The Paracetemol just doesn't seem help and it is waking me, which doesn't help my fatigue.

I will tell my oncologist next week but before I see her I just wondered if anyone had any hints or tips. 

  • Hi

    Having horrendous headaches and aching bones sounds very unpleasant and I presume that you've advised your hospital team about these.

    Although I don't have any experiences with this to share with you I noticed that you hadn't had any responses to your post yet. This is probably because this is such an active group that posts sometimes slip off the first page before someone with the right experience has seen them. Replying to you will 'bump' your post back to the top of the discussions list.

    While you're waiting for replies if you type 'headache' and 'aching bones' separately into the group search bar you'll find previous posts on these topics which you could have a read through to see if any of the posters mentions things that helped them.

    Do come back and let us know how you get on next week when you see your oncologist.

    x

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  • FormerMember
    FormerMember

    Hello Cathy, I also suffer with achy bones, mostly in my legs and feet at night, i found this was always worst when i was having to inject the 7 days after chemo and then it stopped for me. I just took co-codamol and rested as much as possible. I was on doxecetal on those 3 cycles, have now switched to FEC. Hope the achy bones are improving for you, if you did find anything that helped i would be interested to know. X

  • Hi

    I've just finished 5 months of chemo which ended with 3 cycles of FEC. I am suffering with aching legs mainly at night and think it is from the filgrastim injections. I have found a warm bath plus using a warm wheat bag on my legs in bed has helped a bit, paracetamol makes no difference to the pain for me. I hope it settles for you soon.

  • Hi Cathy,

    I’m on EC chemo at the moment. I’m taking the filgrastim sc injections for 7 nights after my chemo. On about night 6 and 7 my lower back and legs start ‘pulsing’ and are painful, that’s the pattern so far anyway.

    I asked my GP for a co-codimol 35/500 prescription. This seems to deal with the pain well and seems to be enough to get me over to sleep. I’m intentionality taking the injections at about 9pm.

    Have you asked/would you want to ask your GP for stronger painkillers? There are a few you can try so don’t have to stop at the first one if it’s not working.

    If it was me, I wouldn’t wait. I’d get on to my GP or BC Nurse.

    Bluebell xx

  • FormerMember
    FormerMember

    Thank you everyone. 

    Oncologist has given me some Tramadol which I'm taking overnight and has helped. 

    Onwards and upwards 

  • Hi Cathy,

    Good to hear. Hopefully you have a good night.

    Bluebell xx