***FEB & MARCH 2021 BREAST CANCER CHEMO**

@eiluj you seem to be describing my se almost exactly.   Sun & Mon (days 4&5) were particularly low.  But then last night I started to lift a bit, took some paracetamol and had reasonable nights sleep.  Today I definitely feel better, still not great but improving     Its hard at the time but important to remind yourself,  it's a few days then we will improve.   I  also think I need to use pain relief a bit more, paracetamol would have helped control my temperature and allowed for more restful sleep, also kept the edge off the ache.  I'm not one for taking tablets unless its painful, but I do think I might have felt more comfortable if I'd taken more. 

And yes that horrible mouth feeling is disgusting!  

Sending well wishes to everyone xx 

Hi Ruby,

Hope you’re feeling OK.

I’m just back from the chemo unit after getting my bloods done. The Nurse who, pretty much, is the boss of the unit had heard about the new 5 minute jag, he said he was going to make some enquires as it would be so much better.

I hope it is approved soon as he said I’ll be on P and T every 3 weeks for a year.

He said that as I hadn’t been nauseous on EC it was unlikely that I’d have that side effects with D.

He said that a third of people get no joint pain, a third get joint pain that can be helped with co-codomol or such like and a third need something stronger. It should only last for a few days. Just have to see what happens!

Nice sunny day here so I’ll try and make the most of it. 

Bluebell xx

Hi Bluebell,

Im just home from bloods too and also just had my second Covid jag. By the sound of things the new jag is exactly what I’ll be having after my chemo is over. Subcutaneous injection in the unit every three weeks rather than in the vein, hopefully you’ll get the same.

I also asked about the two day chemo when I move on the the Docetaxel and Herceptin, and it seems like it’s for the first time only. So I’ll have the Tamuzamab and Perjeta on the first day and have to wait six hours after in my local hospital and then do the long trip on day two for the Docetaxel. It’s a bit of a thought but after that I can have them all on one day. At least I know now how it works.

We had a lot of snow last night but sunshine now so will try to get out and enjoy the next couple of days. 

Wishing you lots of luck for Thur,

Ruby xx

Hi Ruby,

Yes, it must be a bit daunting having to get your treatment over 2 days, especially with the travelling. At least it’s only for the first time though.

It does sound the same. It must be approved in Scotland then or at least approval is in the pipeline. I hope I can get the sc injection too as it will be so much better.

No snow here but it is cold. Wholly hat weather for my baldy head!

All the best for Thursday and hope you’re OK with the vaccine.

Bluebell xx

H Bluebell Woods the jab will make a huge difference I'm Her2pos my treatment plan did not include perjeta ( have a read of profile if you want ) 

After chemo (EC) I had Hercetin ( trastuzumab ) jab in thigh every three weeks x18 . Would only be in unit about 15 /30 mins hardly any SE . Only tip would be if you do get it ask for phial so you can warm it up n hands . Otherwise it hurts going in  

Ive finished Herceptin now and just continue with bisphosphonate infusion every six months til end next year .

best of luck with minimal Se 

Finding this hard so near yet so far my last chemo session was to be Thurs but has been moved to Mon cos my consultant was on leave. Feels like the finishing post is being pushed further back. Know i will get there but the waiting is unbearable.

Just wondered how others felt when they finished. How do you come down from something you have been psching yourself up for every fortnight for 16 weeks?

That must be so frustrating and hard when you’re so near to finishing I’ve still 3 more to go so can’t answer the ‘after cancer’ part but sending hugs in the waiting moments, nearly there...one day at a time

I found the last 3 to be difficult  psychologically, with a great sense of relief as they took the picc line out after the last one.  Actually that was the best part. Now have to go back every 3 weeks for the Herceptin jab. And currently waiting for the radiotherapy appointment ( 5 over 5 days). I cold capped for 12 hours of chemo, in total, and hair finally stopped thinning a couple of weeks later.

It's a great feeling to be at the end of it but it can be hard getting there. Good luck!!

Hi Margaret,

Thanks for the info. Yes, I think the injection would be so much better. Fingers crossed I can get it at some point. 

I’m giving myself the white cell boosting sc injections for a week after chemo and did once forget to let it get to room temperature. Not so great when it’s straight out the fridge . Only done it once though!

Bluebell xx

Hi Ladies, hope you are all coping well with your journeys. I have a question, does anyone else suffer a runny nose through your Chemo cycle? I find mine is 4-5 days into the start of a cycle. I thought the first time it was hayfever but had no other symptoms and now I’m on the third cycle and it’s happening again. It lasts for about two days. My nose isn’t stuffy or blocked it literally just runs constantly. I am taking antihistamine tablets daily.

Take Care

Janine x