JanG20, my hair is all gone now too at least on my head. My legs hairs are all still there & arms hairs. I did a buzz cut because the pixie was too long and the amount of hair falling out was incredible. It feels so much better & my head is an okay shape. Lol I’ve just been wearing my winter hats outside but I did have an annual eye appointment and wore my wig with a hat on top. I haven’t really told anyone other than family members & my closest friend. I live in a small community and I’m not ready for them to know but that’s just me. Gutter, My side effects (SE) started after day 2 of my first treatment. I wrote down everything so I was better prepared for the next round. Hopefully it stay minimal for you & good luck the next week.
Hi Daydreamer6 Hope that you do get it all sorted tomorrow and that your surgery goes ahead soon. And hope you have enjoyed a glass of wine and a weekend free of side effects.
Hope that everyone else is having as good a weekend as possible and that all of you have just had treatment are managing your side effects ok. The one piece of advice that has been given to me by every single medic is to exercise whenever possible and it really seems to work. A short walk is fine - just moving really does help and being out in the fresh air is a great boost to the mood. Sometimes all we can do is lay in bed or on the sofa and if that is the case we have to go with it. But if you can push yourself to do any exercise it really is beneficial. I think I probably walked too far yesterday - Paclitaxel seems to be giving me aching limbs for a few days and by late afternoon I really did ache everywhere! But the sun was glorious, there were people out enjoying the weather, I had a lovely chat with a friend/neighbour and it certainly did wonders for my mood. And a lazy evening and early night helped the aches and pains.
Good luck Hollythecat and anyone else having treatment this coming week. I will think of you having your final treatment on Thursday Hollythecat. For everyone else, another week ticked off and another step nearer to finishing treatment. x
Good morning everybody. Can’t say how much I am finding all these comments helpful. Day 3 after my first EC treatment. Waking a lot in the night with hot flushes, anybody else who experiences them, how long did they last? Also feeling very emotional and not sure why. Definitely agree with the getting outside. It was the best advise my oncologist gave me straight after diagnosis. Take care everyone.
Hi , I hope you are getting on okay after your first EC treatment. I am on FEC and prior to that had paclitaxel and carboplatin. I do find I wake in the night with hot flushes for about 5 days after the treatment. For me I think it is the steroids that cause it. I am now 2 weeks since I last had treatment and feel fine, I did have a small glass of champagne on Friday to celebrate my husband retiring from work, it gave me hot flushes and made my stomach hurt, but it was worth it. I also find I get very emotional for no apparent reason usually when I am doing the filgristrim injections. I think it is down to all these strange drugs in my body and have noticed there is a pattern with it. Just take each day as it comes and do things you like doing when you can.
PatsyP2, thank you for your good wishes, I am anxious about Thursday as I have to go to a new unit, but can't wait for it all to be over, it's been a very long four months. I totally agree with you about getting outside for a walk or doing whatever exercise you enjoy however small. I was a big walker before diagnosis and have continued to walk and do pilates as much as I can during the treatment, it has made a huge difference to how I feel.
Take care everyone, I hope your SE are manageable and for those just starting this journey, keep going you are all stronger than you realise xx
i am on day 4 of starting my first round of EC. I feel ok but just a bit tired. However I am pregnant so it could be that. I’m hoping I continue like this but I am aware everyday might be different.
I have had a port fitted and I can really notice my heart beat when I’m laying down. Also it feels like my heart is racing a lot. Has anyone else experienced this?
Hi everyone, hope you are all coping well with your treatment. I started my fist cycle of TC Chemotherapy just over a week ago, 19th February. I’ve had usual symptoms on and off like bowel problems, aches and tiredness but no where near as bad as I expected. 3days ago, 26th I had a bad headache so took my temperature before taken paracetamol as advised by my oncology department and it was 28.1. Within 30 mins I was on the Acute Oncology ward having IV antibiotics. My bloods came back that my white blood cell count was so low that basically my immune system had been wiped out. I had a booster injection, Filgrastim and was given a 7 day course of antibiotics. I went back yesterday for more tests. My white blood cell count showed no improvement so I had another boaster injection and although they wanted me to stay in, they decided it was safer for me to be at home so they gave me injections to have daily at home for 3 days. I had a phone check up this morning and they are happy my temperature is under control, 37.6 and I have to go back tomorrow to check my white blood cell count. The thing is apart for swollen glands in my neck and a high temperature, I have no signs of infection. Has any of you lovely ladies been through similar to this? I knew it could happen but wasn’t expecting it so soon after my first dose of Chemo.
Hi, I had similar but my cell count was OK. My temperature dropped 5 days after EC and I felt terrible. The docs thought I had a virus. I had IV anti biotic and fluids. My ocno says the dose may have been to strong, and will reduce it next time. I feel fine Now. I hope you are OK. x
Hi JanG20, hope you’re doing ok. Sounds as thoug h you’re a step ahead of me on our chemo journeys. I’ve had 1 cycle & struggling a bit but managing. I’m also due to have a PICC line next week & feeling terrified of it. I’m very adverse to anything invasive like that. How did it all go fit you? Sending love x
Hi, I have a PICC line and it was all fine. They put lots of local in the area and I did not feel anything. It does sound scary but it was fine and I think it's easier than having a canular each time.
PinkLady2021 I have only had one chemo session and it was ok Nab Paclitaxel, loada of side effects but manageable with medication after the paclitaxel one being unsuccessful due to a reaction to the drug. My PICC line fitting was not great either ended up having to have it re fitted, it was very painful getting it done and it ended up in my neck dsys after hence having to get it re done which was even worse than the first time. I have to stress though my pain threshold is vvvvvv poor and your experience will be very different am sure. Relax and just talk to the nurses as they are doing it you may have a little discomfort and nothing else. Good luck with everything.
