Radiotherapy tips please and advice regarding zometa

FormerMember
FormerMember
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Hello everyone,

I am starting radiotherapy for breast cancer at the end of December. 
Please could anyone share their advice on how to cope with 15 sessions? 
Have read some really negative discussions on other forums and am feeling very apprehensive. 

I have also heard some awful things about the zometa drug infusions and wondered if there’s anyone out there that has had it if they could give me some helpful advice on how to deal with this?

I am feeling completely overwhelmed by my cancer diagnosis!Frowning2️

Thank you in advance for any and all replies  

Fi x

  • FormerMember
    FormerMember

    Hi,

    I’m 4 sessions into my 15. It’s going smoothly, albeit tiring having to attend. The staff are really great, helping me in to position etc. I’ve changed a few appointments due to childcare and they are approximately at similar times each day which is helpful. I raised a concern today about some discomfort and they checked me throughly and were reassuring. I’ve been feeling a bit queasy but unsure wether or not this is related to the treatment or not at this stage.

    The first appointment consists of a CT scan and positioning. This is the longest session, thereafter the treatment is very swift, the radio is only 3-4 minutes itself. 

    I hope your ok, I know the anxiety can get a bit much, hopefully you’ll feel better once things progress.

    When do you start your treatment? Please give me a shout if you’d like to know anything more.

    Take care x 

  • Hi Just to get back to your question about the Zometa. I have these infusions every 6 months, along with many other people on this site. I was also worried about side effects, particularly jaw necrosis. I had a check up with my dentist who assured me that it really is just extractions and any dental work affecting the bone that needs to be avoided whilst on the infusions. I had a filling 2 months ago (was advised to leave 8 weeks either side of an infusion just to be safe). Fingers crossed I have not had any issues with that. I am about to have my second infusion in a few weeks time. The main side effects I had were feeling like I had flu for about a week after the infusion - tired, sick and achey. That said, I have read many posts by ladies saying they haven't had any side effects at all. We all react differently. I see this drug as a bonus really because the aim is to protect our bones from those pesky breast cancer cells. Try not to worry too much but do have a chat with your dentist and ensure he/she knows about the Zometa. 

    I also had 15 sessions of radiotherapy. I did get quite a bad skin reaction but again a lot of people really have just minimal effects. It only affected me right at the end of treatment and for about 3 weeks afterwards. the skin has gone on to heal well now though.

    Sending hugs and good wishes for your treatment. Hang in there, you can do this. x

    "Hope, it is the only thing stronger than fear." (President Snow - The Hunger Games)