Trivial matter - drinking

Hi Mark,

I never noticed anything like you describe, and yes it was my left boob too, but only had sentinel nodes removed for checking and all were negative. 
Something to ask your BCN about? 
hugs xxx

Hi moomy

Many thanks for the reply 

Yes seeing surgeon/consultant  Monday now instead of today as originally planned, so will ask him then

Hope you are doing ok

big cyber hug

MrT1

That’s good, hopefully it will be a reassuring answer!

Hugs xxx

Hi there

My partner found a US cancer forum website with this exact problem posed. There were over 90  people also reporting this side effect but that was over an 11 year period. So feel better now knowing I’m not going barmy. Some posts said it lasted a few weeks, some 6 months and a few longer so like everything else in this battle, it seems to be how each persons body reacts to mastectomy 

big hugs to all

Mark

Hi there

My partner found a US cancer forum website with this exact problem posed. There were over 90  people also reporting this side effect but that was over an 11 year period. So feel better now knowing I’m not going barmy. Some posts said it lasted a few weeks, some 6 months and a few longer so like everything else in this battle, it seems to be how each persons body reacts to mastectomy 

big hugs to all

I do know it’s a symptom that some Hodgkin’s Lymphoma patients report. But they only list it as a result of alcohol rather than temperature 

Hugs xxx

Hi MrT1   Mark

Not sure where you are with treatments but I definitely had the same sensation following my mx, when drinking cold or hot stuff, it sometimes felt like it was wanting to leak out of my body and definitely noticeable like you describe.

I definitely don't get it anymore (6 months post op) but seem to think it lasted maybe a month or 2.  Or maybe all the other odd sensations have meant I have stopped noticing it eh??

Have a speedy recovery & hope you get to experience steaming mugs of tea & cool acoloholic beverages soon.

Sam

Hi Yorkshire Deector

sorry for slow response, as I’ve just said on another post I have not been getting notifications except for duplicates of ones I have already had!

thanks for your reply and good to know it is something uk patients have noticed as well as us. Just got to get through this for a few more weeks I guess. Good job the weather has got colder and I don’t need ice cold drinks to cool down.

2 weeks post mastectomy follow up appointment Monday

Hope you are doing well 6 months out. Did you have chemo or start hormone therapy?

Cheers Sam, mines a Luke warm ribenna! 

Hi Yorkshire Deector

sorry for slow response, as I’ve just said on another post I have not been getting notifications except for duplicates of ones I have already had!

thanks for your reply and good to know it is something uk patients have noticed as well as us. Just got to get through this for a few more weeks I guess. Good job the weather has got colder and I don’t need ice cold drinks to cool down.

2 weeks post mastectomy follow up appointment Monday

Hope you are doing well 6 months out. Did you have chemo or start hormone therapy?

Cheers Sam, mines a Luke warm ribenna! 

Hello Mr T1,

funny you should say this but I asked my surgeon about this last week!! I feel any cold drinks run down the centre and spread out to the right for me - rhs mastectomy. He didn’t know. Even thought about the anatomy following it with his finger!!! Intriguing!!! 

I hope you get on ok. I’m four weeks after surgery and have to do more chemo. I had 8 cycles of FEC-T before surgery. I’m triple negative.