Male Breast Cancer. Awake again!

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Hi

Really didn’t expect to be here but thanking my lucky stars I have an amazing partner with me, but I do worry about her, having been through this twice with my late wives, I feel it is harder for her than it is for me. So I need to prep her for likely outcome and it is difficult to find.

Had a mastectomy a week ago and originally told I was going onto Tamoxifen for 5 years. Awake early as one tends to be these days and trying to find out what this treatment does.

Does it kill stop the cancer returning permanently or just reduce the risk of it returning for 5 years?
What happens at the end of 5 years?
Survival rates for men are difficult to find but I think Cancer Research, given my age, give me a 85% chance of surviving 5 years and gradually decreasing after that. So I guess that’s 5 years of taking tamoxifen, so do I assume the drug stops working after 5 years?

My first wife had breast cancer treated with lumpectomy, radio, chemo and tamoxifen and didn’t quite make 5 years but was a higher grade cancer than mine to begin with and was 6 years younger at diagnosis.

Can anyone point me in the direction of some helpful, clear survival rate information for male breast cancer, it would be really helpful to know the full picture, I know nothing is certain but most likely scenario would be really helpful at this point. I’m seeing the oncologist in a weeks time but that’s another week of little sleep!

Thank you and big hugs to all 

  • I can't help but I thought it would help to know that someone else is up, read your message and is thinking of you.

    Five years does seem to be a ' magic' number. It's the point I've been given for TNBC not returning. It's the time that prescriptions and consultations are paid for in France. It must have some significance. My sister diagnosed and operated in the week before lockdown has been given the same treatment and timescale as you. But for men.......I wonder if  will pick up this notification?. She's very well informed in the documentation or where to find it and she may be able to highlight figures to help you.

    I hope you get some answers but more importantly a sucessful recovery. It must be very frightening for you having had such close connections to less positive outcomes. If lots of chatty women can help alleviate your worries please join us on Awake! ( Seriously, we'll help  with any bits of information or concerns you still have if we can.)

    Take care. Love  Karen

    1. I
  • Hi Karen

    Cancer may affect my body, but I won’t let it affect my spirit

  • Hi karen

    Struggling with this app a bit- many thanks for your reply and it is good to know there is someone out there . Sorry to learn of your and your sisters diagnosis and sending every good wish and thought for a successful recovery for you both.

    It seems the recovery for men is harder to find as it is has a smaller incidence in men. I’ve sent my two sons (24/25) to have blood tests to see if I have passed on the faulty gene to them.

    i have dipped into the Awake! thread and will keep a eye on it as you suggest.

    Thanks again

    sending a huge hug , take care 

    Mark

    Cancer may affect my body, but I won’t let it affect my spirit

  • FormerMember
    FormerMember

    Hi MrT1,

    Sorry to hear your news.You will find statistics for male survival is about the same as women,however,men tend to get treatment at a later stage as they ignore symptoms.I have had three men following me in my treatments and a male friend is currently being investigated because of my diagnosis.The American Oncology site has a lot more stats as it is a bigger nation,but a different genetic background to the UK.

    Wishing you all the best.

       Yvie

  • Hi Yvie

    Many thanks for that info and I will have a look through - I have been avoiding non uk sites but I guess if they are prescribing the same treatment the outcomes will be similar.

    All the best for your recovery and hope your friend has a favourable outcome and no need to join this 'club'.

    Mark

    Cancer may affect my body, but I won’t let it affect my spirit

  • Hi Yvie

    Followed your advice and looked on American sites and found some of the answers I was looking for. So I’m young, (well I think I am), and healthy so I should have 85% chance of making 5 years and I reckon my odds are better than that. It seems guys like me are more susceptible to secondary cancer which is concerning but good to be aware of so I can put in place regular checks.

    Thanks for your time, and Karen

    best wishes

    mrt1

    Cancer may affect my body, but I won’t let it affect my spirit