Hello all
I was diagnosed with triple positive breast cancer in 2017. Had spread to my ymph nodes but staging negative otherwise. Did 3 months of EC and then Taxol and then Herceptin for 9 months including after an elective double mastectomy (cancer was on the left breast only) and radio for 3 weeks. I was also put on Letrozole.
I was 46 years old with two teenage kids and otherwise healthy so that was a blow but managed the treatment ok otherwise. When all finished life went back to normal and I thought all was behind me until in lockdown I started getting some back pains. Initially I attributed it to working from home in uncomfortable setting but when pain got worse I went to see a doctor who asked for an MRI. The MRI showed extensive lesions in my spine, femur and pelvis. When I got back in touch with cancer doctor we did a PET/CT scan that also showed cancer on my lymph nodes under arm pit- that had not been removed during mastectomy as too deep and not visible - and also on nodes near the lungs.
Biopsy was a little tricky as they wanted to get to cheat lymph nodes to avoid doing in on bone tissue, which h I understand is less reliable, but when they got it it showed cancer was now triple negative which may explain why it came back.
I was very surprised about that but understand it can happen. Anyone else had a return of cancer in a very different form? Started treatment 2 months ago and on Paclitaxel and Avastin and side effects so far ok. I am also on danosumab to strengthen bones. I am in less pain but not pain free. Have my first PET/CT scan on 13 October and am really frightened about it all especially given the change from a less aggressive form to one that is less likely to have too many treatments for in case the current one does not work.
Would love to hear from people who went through treatment for same condition
Hi and a very warm welcome to the online community
I'm sorry to read that after being successfully treated for breast cancer you have recently discovered that it has spread. I don't have any experience with this to share with you but I noticed that your post hadn't had any responses yet.
You might also like to join and post in the secondary breast cancer group as there you'll find other people whose breast cancer has spread. If you'd like to do that then just click on the link I've created and choose 'click to join' or 'join' (depending on the device you're using).
When you have a minute, it would be really useful if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
