Newbie!

Hi Florida

Welcome to the forum, I'm Daisy53 one of the Community Champions on this forum.  I'm sorry to hear that you have been diagnosed with stage 4  breast cancer.

Wishing you the best of luck with whatever come next for you.

Daisy53

Hi Florida 

I am sorry you have been diagnosed with breast cancer that has spread. Am I right in thinking this is the first you knew of it? It must be a horrible shock. I also have metastatic cancer but at least had a few months to come to terms with my primary diagnosis before receiving the secondary one. No obvious symptoms in my case either. Small, deep lump found on mammogram, no lymph node involvement probably already spread through the blood. 

It will seem a bit easier once you have a treatment plan. Many of us live good and long lives with secondary breast cancer and I hope you do too. 

• Thanks for your reply. Sorry you're going through this too. But glad ur pushing through and still living life! Gives me hope that I can do the same! 

Yes, this was the first I knew anything about it. I had lots of tests to try to find the cause of my anaemia, then had a bone marrow biopsy, thinking it was blood cancer, but then got slapped up the face with this! 

My oncologist is very positive that he has a good treatment plan - zoladex, Letrozole, Ribociclib and denosumab. I've done my first round of Ribociclib, had my week off, but my neutrophils dropped really low, so I'm now on week 3 off it as they still haven't risen enough. I'm hopeful I'll get back on it next week at a lower dose. I'm also hopeful this is just my body adjusting, as I couldn't face this every 21 days! 

Other than being given this diagnosis, i have absolutely nothing new wrong with me other than chronic knee and hip pain from an old injury, which i manage very well. I've got far too many travel plans for this to be interfering with lol

Hey,

I have recently been diagnosed with bone secondary to breast....my treatment is a nightmare was supposed to start weekly chemo 9 weeks ago,unfortunately my platelets are too low so on hold, I have been started on tamoxifen for now....its soo frustrating you want to crack on but I feel like I'm in limbo....how were your platelets? My haemoglobin levels keep dropping too so have had numerous blood transfusions..sort of how I found out through anemia like yourself, however I was having back and leg pain for a while too...

Love your positivity, keep it up

Keep smiling

Lisa m xx