Secondry breast cancer in Humerous and left Hip

Hi Babs2k

Welcome to the forum, I'm Daisy53 one of the Community Champions on this forum.  I'm sorry to hear that you have been diagnosed with secondary breast cancer.  If you feel up to it why not ring the helpline on 0808 808 0000 to talk to someone about how you are feeling, they can even arrange counselling for you if you wish.  Also if you have a Maggie's centre or another cancer centre near you why not call in or give them a ring and they can also arrange counselling for you if that's what you would like.

Wishing you the best of luck with your appointment with Oncology.

Best wishes

Daisy53

Hi Daisy

Have just been yesterday for first Oncology app there nearly 3 hrs lots to discuss and form signing blood tests

Will be having Anastrozole long term to reduce estrogen Palbociclib cancer drug 24 months  initially will stop on if working and high dose of Radiotherapy 

Have you heard anything about the two drugs I'd already been on Tamoxifen for breast cancer

Best wishes Babs 

Hi Babs2k

i’m on Anastrozole and have been since 2024. I’m getting on well with it. I don’t know anything about the other drug you will be on. If you look on the drugs section of this site you should be able to find some information on it.

Best wishes

Daisy53

Hi Daisy

That's great thankyou xx

Babs

Hi Babs,  I had lobular breast cancer in 2012/13.  Had lumpectomy, chemo and radiotherapy then tamoxifen and anastrozole.  Diagnosed with secondary breast cancer end of 2024 with mets in pelvis, hips, spine , ribs and skull.  I am on Exemastane which is like Anastrozole, ribociclib which is like palbociclib and denosumab injections to strengthen the bones.  I have had radiotherapy on my spine to help with the pain.  Last scan couldn't see skull mets and cancer is stable so good news.  

Lee x

Hi Lee

You certainly have a lot to contend with must be very stressful for you and it's good that there's no mets in the skull and everything is stable so  that it keeps that way 

Have you had any side affects I've been feeling quite tired and a bit off on Anastrazole but it could be stress related didn't have any problems previously with Tamoxifen.

I'm due to have my bone strengthening injection next week and the cancer drug So feeling a bit apprehensive 

Babs xx

Hi Babs I had a really bad skin reaction to 600mg Ribociclib so oncologist has reduced my dose to 400mg and it seems fine now.  I do get tired but I find keeping active really helps me.  I walk every day and do Tai Chi on a Friday.  I have to be careful as I have lots of mets in my spine but gentle excercise is okay.  I have a back brace to wear when I go walking.  Are you having denosumab for your bones.  I have ribociclib every day for three weeks, then one week off.  Have bloods done every four weeks and then go and have my denosumab every four weeks too.  I really hope that you get on okay with your treatment.  When are you going in?

Lee x

Hi Lee

It's the side affects that I'm a bit apprehensive about I'm already feeling a bit tired on Anastrazole 

I'll be on Palbociclib cancer drug 21 days on 7 days off then repeat initially for 2 years if working to carry on, if not will go on something else, also Denosumab to strengthen bones long term have to go for blood test min 2 days before this is every 4 weeks going Mon for blood test.

I'm having 1 high strength radiotherapy session this coming Tues at 12 noon then have to go to have injection plus given cancer pills at another hosp straight after so is going to be a bit of a rush 

I do try and stay active going for short walks to hopefully keep my strength up 

Babs xx