Fairly newly diagnosed with spread to lung

I think that’s a long delay personally and would push to start chemo as soon as possible. 
I was diagnosed with Triple negative late August 25 and started chemo mid September. I’m 58 and had my chemo in Norwich. 
I would keep phoning … all the best and I pray you start before the end of April. 

Hi TibbieMum 

I am sorry you have been diagnosed with triple negative breast cancer that has spread to your lungs. I have triple negative breast cancer that spread to my liver. TNBC isn’t a homogeneous disease and your oncologist will need the results of a number of different tests before being able to treat you. Whilst chemotherapy is part of treatment for anyone with metastatic TNBC, other drugs may be added depending on the pathology of your tumour samples. For example some, but not all TNBC benefits from the PD-1 checkpoint inhibitor immunotherapy drug Pembrolizumab, and some from the PD-L1 inhibitor Atezolizumab. It’s important you get the most effective treatment for your cancer. Hopefully your oncologist will have everything she needs when she sees you and you will start treatment soon. 

Thank you so much, Coddfish.  Your reply is very helpful.  I have found myself surrounded by people appalled at how long it is taking to get chemo, but their cases are different.  I know my oncologists are trying to get the chemical mix just right. And I was told yesterday that immunotherapy won't be effective, for me. But the spread is limited, and hopefully chemo starts in a couple of weeks. Fingers crossed. All the very best to you.

Yes - they wouldn’t be able to start treatment without knowing whether immunotherapy was an option or not.

I think you will generally find people don’t understand TNBC is different to the more common oestrogen driven breast cancers.

I had my hip replaced last year and the first consultant I saw couldn’t be shaken from his view that my hip would need to be cemented because my bones would have been compromised by breast cancer treatment or susceptible to future metastasis. Of course I have never taken oestrogen blockers and I have the type of bc that’s least likely to spread to bones. I went to someone else who recognised that I have the strong bones of a runner and was happy to do the cementless replacement that would allow me to keep running. Got the new hip, got back to running. 

Well done Coddfish, re your hip replacement! I didn't know it was least likely to spread to bone.  It isn't in my bones, which is about the only good news I've had in 4 months.

You are a fount of knowledge, thank you!

It of course doesn’t mean it can’t!