High grade DCIS

Please try to remain as calm as you can because stress and worry will make your mind go to very dark places.I dont know where you are in the country but it really is different for everyone.Mine is in the lymph nodes but not anywhere else so i am so stressed.However the biopsy result is currently showing grade 2 and hormone positive and HER negative so these are the better types if there is such a thing.have you had CT and bone scan?

The problem is that all scans are clear and biopsy shows one thing, but we are looking at approx 2 months before surgery and potentially a different story

Thanks I’m trying to. No just waiting for surgery then the results from that. Early stages for me I suppose. My results said this, no clue what it means - Left breast biopsy: High nuclear grade ductal carcinoma insitu with comedo type necrosis and microcalcification, can not exclude invasive ductal carcinoma. B5c. Ductal carcinoma insitu is negative for oestrogen receptor.

necrosis is cell death and i think it is seen in more aggressive DCIS.I think the B5c means it isnt clear if in situ or more invasive. Im sorry, im not helping your stress levels.Negative to Oestrogen means it wont respond to hormone blockers but others therapy is used like chemotherapy and immunotherapy.So if you have not had scans how do you know anything regarding potential spread?

Hi I am sorry to hear this.  It is all so quick and overwhelming. I was diagnosed with high grade DCIS on 27 March.  I have surgery on 6 June and am so worried and upset. I have to make a decision about flat or reconstruction and I am stuck.  Tempted to go flat an be rid of all of this, but into to hear what your thoughts are? 

Hi there, it is very overwhelming! Bless you, I’m so sorry for your diagnosis too. I think it’s your individual choice I suppose. They haven’t given me this choice as they think they can get it out without my breast becoming mishapened. Not sure what I would choose to be honest but when I was first told I thought just take it off and get rid.

I haven’t got a date yet, but they did say sometime in May. 
I too am scared and anxious, some days I can put it to the back of my mind and others (like today!) it’s all I can think about. 

Take care x

Just got my date! Next Wednesday, I’m so nervous. 

Hi. I had a diagnosis of DCIS back in 2021. I was told to have a single mastectomy and was given the option of reconstruction after 12 months.  I kept mentioning this but when I finally got an appointment after tests done as I have a pacemaker was told I couldn't have reconstruction as it was a risk to life. But she offered another mastectomy on my remaining side and a tidy up of previous scar. I feel better now as im even and have prosthesis.  My sister in law had reconstruction and she said they feel cold and not right. Good luck with your decision. Sorry if I haven't helped.  Xxx