High grade DCIS

Hi Jules

I'm so sorry you find yourself here.  The diagnosis is such a shock, its just not what you ever want to hear, is it?

I was diagnosed with high grade DCIS earlier this year, I'm having my surgery this Thursday. Mine was also picked up on a routine mammogram, I had absolutely no symptoms.  

The waiting is the worst, everything seems to take such a long time.  Try to take one day at a time.  It might sound a bit odd, but I feel as if its happening to someone else, and I'm just watching.

My treatment plan has taken a little longer than most, and I wont know until after the surgery whether or not I'll need further treatment, but it definitely gets a little easier when yoh know what's going to happen.

I've had lots of support here, everyone us very kind, and we've all been through something similar.

Joyce x

Thank you so much for this Joyce, it’s not odd at all I feel like I’m in a dream of some sort. Most days I’m ok, but today I can’t shift this horrible daunting feeling. I do feel lucky it’s all moving relatively quick I suppose. Best of luck with your surgery x

Thanks Julie's

I have to admit I'm a little bit terrified, but it will soon be over.

Happy to help in any way I can 

Joyce x

Hi Jules72 

It is a big shock when suddenly you get told that you have this, when you've had no symptoms. I had high grade DCIS as well as a tumour.  The treatment is similar for DCIS. But, the best thing is that it hasn't yet turned into cancer, so do hold onto this that it's very good news that they have caught it before it's turned into anything 'nasty'.

When you get your treatment plan, you will find that things are much easier to get your head around and you at least will know what's happening.

Try to take each step at a time, rather than worry about what's ahead.

Kindest wishes, Lesley

Thank you Lesley, that’s really helpful. 
I am trying to stay positive, and most days I’m ok but the last couple of days I can’t stop thinking about it, just so shocked but yes at least they have found it early.

Thank you for taking the time to reply, the support on here is fantastic and I’m so glad I have joined.

Hello. 
I am sorry about your diagnosis, and that you find yourself here. 
Once you get a treatment plan, it does get easier. Try to just take a day at a time. Do things that you enjoy, get out for a walk. 
Sending hugs. x

Thank you so much. I had my pre assessment appt come through for the 20th April so taking each day as it comes. Have good and bad days really. With this lovely weather am taking the dog on some lovely walks which really does help. Struggling with work and concentrating so took a few days off x

Good luck for today Joyce, sending lots of love x

Aww, bless you. This journey is definitely a rollercoaster. Keep doing the lovely dog walks. 
It won’t be long until your appointment comes round. Good luck with it. x

Hi Jules.I too was diagnosed 2 weeks ago.Routine mammogram then breast clinic for ultrasound and biopsy.Communication has been poor and i found the radiographers report of the biopsy on the NHS app.So i knew before i went to see breast surgeon for results.This is where i get so confused.At diagnosis i was so devastated that the surgeon just said a lot of probablys and maybe.It was only when i received his letter last week that it was more explantory.I too have high grade DCIS it is cancer and it is in the lymph node under armpit.I felt DCIS was contained? however, for me they have sent me for more scans before any plan.I feel like this thing is bigger everyday, i can no longer wear a bra due to discomfort.It is true though that the unknown and waiting are the worst.It will get easier in some ways once we know our treatment plan