Recently diagnosed & recovering from Lumpectomy

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Hi,

Ive recently been diagnosed with high grade DCIS at age 36 not something I’d ever heard off or expected and the last month has been a rollercoaster of emotions.

I had a lumpectomy 2days ago and now recovering at home , awaiting for the results and next steps is scary but I’m trying to remain positive.

Looking to chat with those who have gone or are going through this as while I have a great support network it’s hard Disappointed

Thanks 

Fran x

  • Hi Fran

    Are you recovering well?  Hope so. 

    I had a lumpectomy and sentinel lymph node biopsy on Monday this week. I was diagnosed with invasive ductal carcinoma following a routine mammogram done on 2 January  as I'm over 50.  It's grade 2 but they can't tell me the stage until they've got the results from the nodes. 

    Do you have a date for your results yet? I'm finding the waiting to be the worst. My appointment came through yesterday for 11 March. I'm trying to stay calm and positive but its hard. 

    The op wasn't as bad as I imagined and I'm managing the niggling pain ok with just paracetomol. 

    I have a 2 to 3 inch scar under my arm but I'm pleased (if that makes sense) with the scar on my breast. Its around the edge of my nipple so hopefully it will fade and not be that noticeable eventually. 

    These forums are so helpful. No one can understand unless they've been through this and I have found everyone to be kind and supportive. 

    Sending you love and gentle hugs

    Sue x

  • Hi Sue,

    Thank you for the response and sharing your story it’s really appreciated.

    Sorry to hear what you are going through but I’m glad your surgery went well.

    I felt the same surgery went better than I expected and while I’m very tired & a little sore it’s going well, the hardest part not being able to do what I usually do with my 4 year old daughter but she’s been amazing bless her

    Wishing you all the best for your results next month, I have a follow up end of next week and hoping results will be in but if not it will be the following week. I’m trying to remain calm and a positive like you but it is difficult however it’s nothing I can control so just holding on hope for whatever comes next.

    Oh absolutely that is why I wanted to reach out as speaking about it really does help and so grateful for these platforms it’s just heartbreaking so many people are having to go through all of this Disappointed

    Wishing you all the best and sending hugs 

    Fran x

  • Hello. 
    I am so sorry that you have been diagnosed with Breast Cancer. I hope your recovery is going well? 
    It is the waiting for results/appointments that is the hardest part. I hope that the results don’t take too long to come through. 

    I was diagnosed in September last year, I have been through Chemotherapy, and I had a lumpectomy on the 18th February, so am still recovering too. 

    Have they said what other treatment that you may need, or are they waiting for results first? 
    You have got this. Sending hugs. xx

  • Best of luck with your results Fran.

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  • Hey,

    Thank you for the response and kind words.

    Day 2 and feeling very tired and a bit sore but doing ok thanks. Hopefully won’t have to wait too long for the results but the anticipation is so nerve wrecking!

    sorry to hear about your diagnosis and all you have gone through , hope your recovery is going ok? 

    They did mention radiotherapy but haven’t gone into too much detail and are waiting for the results so they can provide the best next steps. 


    Thank you and right back at you , sending hugs xx

  • Hello. 
    Aww, you are so welcome. No problem. 
    Did you get painkillers from the hospital? I have been managing on paracetamol, I only had to take Ibuprofen once. 

    Fingers crossed that your results don’t take long to come back. It is so nerve wracking, and it’s the club that none of us want to be in. 
    It does get easier once you have a treatment plan. 

    Thank You so much. Like you, I am waiting on the results of my surgery to see if I need anymore treatment. 

    Get plenty rest. Enjoy your day. 
    The support in here is great. I am here anytime. xx

  • Hey,

    No pain killers from hospital but been taking paracetamol and that seems to be enough which is good.

    Absolutely not a club anyone wants to find themselves in right? But here we are and I’m grateful for these forums to share experiences, gain advise and support it’s very comforting during a difficult time.

    I hope you don’t have to wait to long and wishing you all the best in your recovery and next steps.

    thank you very much and same to you xx

  • Hiya Fran and Kezdc

    Day 6 of recovery and going OK. Hope you both are continuing to improve too. 

    I have my post surgery results appointment on 11 March so no doubt anxiety levels will peak again soon. Trying to stay calm and positive. They've already told me I'll need radiotherapy and hormone therapy but no more details yet. 

    I managed on 3 doses of paracetomol yesterday rather than 4 and hoping to manage on 2 doses today.

    Wounds feel a bit tuggy but not really painful.

    Did either of you have the cling film type dressing? Mine is starting to flake off under my arm where I had the lymph nodes removed but still seems intact around my nipple. 

    I'm still showering only from the waist down and using wet wipes from the waist up.

    I'm a bit scared of getting the scars wet and risking infection as I'm immune suppressed from rheumatoid arthritis medication. 

    Keep in touch when you feel like it .

    Love and hugs 

    Sue x

  • I agree. These forums are really good. 
    I am glad the Paracetamol is enough. 

    Best Wishes. Keep in touch. xx