Hello breast friends ^^
On Monday I was diagnosed with grade 2 lobular cancer in my left breast at 33. No known risk factors, no history of breast or ovarian cancer in the family so I wasn’t really monitoring for it.
Had some strange symptoms 6 months ago after my niece was born and I was very involved in the pregnancy and birth so I put them down to that. I feel so annoyed at myself now that I didn’t get them checked earlier, but I was distracted and I’m young, and a bit of a hypochondriac and every google search tells you cancer so I ignored it.
Eventually a nurse referred me to get tested after some mastitis (I’ve never been pregnant). Only a U3 on ultrasound, large 5cm (scary size) mass. I’ve had biopsies and an MRI so far. Waiting for a CT in a week and my treatment plan next Wednesday. All I know is it’s very oestrogen responsive which is a good thing.
I’m trying not to do too much research. But finding people on social media (Hank Green, Ann Russell) who have been through it seems to be comforting right now.
The wait is really hard, especially for my family. I’ve told everyone now and have so much support, but I feel guilty about what’s to come and how much help I’m going to need. I’m incredibly lucky that I’ve just moved back in with my parents.
I’m hoping to talk to some other people who get it. These forums seem really lovely. ️
Hi YeetEmOff,
I’m sorry to read about what you’re going through at the moment but I thought it would help a little bit to read about a happy outcome!
I was diagnosed in June 2024 with stage 2 Invasive lobular cancer. I wasn’t shocked to find out because I had been in serious pain if I accidentally knocked my nipple. I had been to the doctors and sent on the two week pathway and the consultant couldn’t find anything to worry about.
the following year, I had a routine mammogram (I’m over 60) and was sent to a breast clinic for a scan. The doctor was very rude and asked me why I had been sent to see her. I told her it was the result of a routine mammogram and she did the scan and then told me to go home and learn how to check my breast properly! I wanted the ground to open up and swallow me but I thought at least I’m okay.
the pain was still so awful in my nipple and it had also become inverted but I refused to go back to the docs for another 2 years due to the way I’d been spoken to.
when I did eventually get to the GP I was again sent down the two week pathway and was told then that I had ILC. I ended up having half of my right breast, including nipple removed and spent the following year having chemotherapy and radiotherapy. the mass was just under 5 cm
Luckily everything has since come back clear and I am now on Letrozole and Sodium Clodronate.
please don’t feel that you have ignored your symptoms. Lobular is very hard to diagnose because it spreads like a sheet and not a lump.
I was advised to use the Breast Cancer Now website and of course this lovely one has been so helpful.
hope all goes well for you and let us know how you get on!
xxxxx
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