I have just been diagnosed with HR-/HER2+ stage 3 breast cancer (lymph nodes are cancerous), with grade 3 cells in all biopsies.
The diagnosis was made privately for reasons of urgency, and yesterday I was referred into the NHS system to await treatment.
My GP surgery is on holiday until Jan 6th. Should I contact the hospital to find out something about possible timelines? Or would that just be annoying and useless? The thought of waiting to start treatment is absolutely terrifying, given the cancer seemed to develop so suddenly and so quickly (my breast ballooned into an itchy, painful mass in a matter of a very few weeks, followed by my armpit). I am of course now petrified that it will be spreading. I keep coming across awful statistics about survival rates for this, and about the effects of treatment delays on survival chances. Is there anything I can do to help my body, or to help to combat this particular type of cancer??? Almost all the "usual" "healthy things" (e.g. vitamins) seem to be contraindicated...
Any advice would be much appreciated.
Hello,
The initial shock of being diagnosed with breast cancer is a terrible thing to deal with, we all go through this and perhaps this is the worst part of the whole cancer thing! Two weeks won't change much even if your cancer is of a more aggressive type. Once you get your first appointment with your oncologist, things will change drastically - you will be in very capable hands and they will act fast and do everything they can for you! Stage 3 is considered very curable so do not panic, try to distract yourself from the worst case scenario thoughts I'm sure you are having. I know it's easier said than done, but do try. A movie, a book, a short walk outside, anything that you enjoy under normal circumstances... The best of luck with your treatment and, most importantly, stay positive and hope for the best outcome!
Lana xx
Hi there
I was diagnosed with a similarly aggressive grade 3 triple negative breast cancer, currently stage 1 awaiting lymph node biopsy results, on 19th November. My NHS team already had a plan in place on the day of my diagnosis and I had surgery on 18th December.
Like you mine seemed to pop up out of nowhere and it did seem much bigger by the time the surgery rolled around, although I did have a lot of swelling from the initial core needle biopsy so not sure how much of this was actually the cancer growing or potential damage from that.
I'm afraid I have no tips on how to slow down any potential growth or speed up your treatment plan, but I just wanted you to know that you're not alone and there are things you can do to manage your mental health in the meantime, which have mostly been covered by the previous post.
Hope you get some movement on this soon.
All the best x
Hi,
I had her2+/hr- stage 2 breast cancer in 1 out of 3 lymph nodes diagnosed June 2021. I had surgery, chemo x6 cycles of TCHP followed by 15 sessions of radiotherapy - so a bit of a hard slog but so far I haven’t had any more problems.
The waiting to start treatment was horrible. My advice would be to phone or email the breast care nurses at the hospital. If they don’t answer leave a message as they might be busy in clinics. They will understand how stressed you are and should get back to you.
I hope you hear something soon and treatment gets started.
There is a good blog written on here by Irish girl who went through treatment just ahead of me which I found really helpful. - sorry I can’t do a link, I’m really crap at IT stuff!
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