Hello everyone
I'm new to Macmillan Forums and would like to introduce myself.
I am now 76 years old and my breast cancer journey started 26 years ago in 1999 when I was diagnosed with a grade 1 node negative ER positive tumour, removed by wide excision and 3 years of tamoxifen. In 2005 I was diagnosed with a recurrence, again removed by a wide excision followed by radiotherapy and endocrine therapy. In 2014 I was diagnosed with grade 1 multifocal lobular recurrence (3 tumours) again removed by wide excision and intraoperative radiotherapy plus exemestane. Sadly in October 2025 I was diagnosed with a recurrence of invasive lobular breast cancer when it broke through my breast at the nipple as a fungating (bleeding and malodourous) tumour.
Needless to say, I was shocked and angry that this lobular breast cancer hadn't shown on my previous mammograms, but as I have discovered, lobular breast cancer is rarely picked up on mammograms.
So now I have no choice of treatment - I have to have a mastectomy and I am terrified of the surgery.
I wonder, has anyone else been unfortunate enough to have 3 recurrences of invasive breast cancer I the same breast?
I really thought that after the recurrence in 2014 I could live the rest of my life without the worry of cancer returning.
