Hi, I am new here. I was diagnosed with cancer at the start of July. Surgery towards end of August to remove 75mm tumour, pathology results showed it was a malignant Phyllodes Tumour - very rare to have this, especially a malignant one. Further surgery planned for end of October to give clearer margins and radiotherapy likely to be after Christmas. First 2 years are crucial with this - if reoccurrence within 2 years likelihood it has spread much higher - prob to lungs as it travels through bloodstream not lymphatic system. If clear for 2 years long term prognosis is much better. It’s all been a huge shock and I am worried and anxious. I don’t want to be paranoid all the time - want to be able to ‘put it in a box’ and live as normally as possibly. Any tips? Anyone else have / had a malignant Phyllodes Tumour?
Hi Aine69
Welcome to the forum, I'm Daisy53 one of the Community Champions on this forum. I'm sorry to hear that you have been diagnosed with a malignant Phyllodes Tumour. While I don't have the experience you are looking I noticed that you haven't had any answers yet so I thought I'd reply to you to welcome you to the forum. This reply will move you to the top of the discussion. Hopefully someone will be along shortly with an answer for you.
Wishing you the best of luck.
Best wishes
Daisy53
