TNBC and complications

  • 0 replies
  • 478 subscribers
  • 38 views

Hello, I'm Jen and I was diagnosed with TNBC Grade 3 on 30th April.  A total shock.  I found a lump the Registrar couldn't feel it but it showed on the mammogram and US as 16mm.  I had a biopsy, but initially only on the breast lump.  

Ive subsequently had a biopsy on the lymph nodes which came back clear.  The initial plan was for surgery (tomorrow) and then chemotherapy and radiotherapy.  I was concerned that my breast was tender and that the lump felt bigger so saw a Registrar for reassessment ten days ago who assured me it didn't feel any different (the same guy who couldn't feel it at all the first time) and that as surgery was just over a week away not to worry.  

I went for the magseed marker appointment last Friday and I knew straight away from the Doctors face that something wasn't right. The new measurement was 35mm.  So magseed abandoned and I saw my Surgeon who straight away cancelled the surgery.  He said I needed an MRI to ascertain if the lump had grown or if it was tissue damage from the biopsy. Just when I thought I had it clear in my head what was happening everything turned upside down again.  

I had the MRI on Saturday (not sure if I should be concerned or relieved that it happened so quickly) and I have a discussion booked with Oncology tomorrow as the surgeon suggested I may need chemo first and then surgery.  I found the lump on 1st April (no joke) and I'm now 12 weeks into this horror (with potentially another two weeks of waiting for results) and still don't have a plan.  The waiting is really impacting on my ability to function.  I don't want to rant, just wonder if anyone has had a similar situation and what the outcome was?  I have lots of friends I can talk to opening, however, the 'just stay positive' vibe is wearing a bit thin.  Although I am trying to stay positive!