1 year post masectomy

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Hi 

I was diagnosed with stage 1 IDC & DCIS in March 2024. April 2024 I had a masectomy with DIEP reconstruction.  I've had 2 follow up appointments in the breast clinic and I feel like im not important to them now. I feel because I didn't need any further treatment they are not interested in me. I haven't seen the consultant again . 

I'm having really bad pain on my reconstructed breast and my other breast. So I suppose I have gone into overdrive thinking the cancer is back. 

  • Hi Killycrum

    Sorry you feel alone and forgotten about. It is a scary time and our thoughts go to dark places at times.

    I have had my treatment and don't see consultant either. I have been back to breastclinic for another lump which thankfully is scar tissue from the op. However my rational head knows that but I like you find my mind wandering to what if they missed something and it has spread. I think we all go through this and reading posts from others it does take time for those thoughts to be less frequent.

    I hope you have good BCN you can talk to. You can also phone the macmillan nurses and cancer care. Or visit a Maggie centre if one close by.

    I wish you well in your recovery. Xxx

  • This is a tricky area.  I have been fortunate and with Guy's hospital I can make direct contact with them for 5 years post diagnosis.

    I see the breast surgeon annually.  I have insisted on face to face meetings.

    My consultants view is that if you are worried check it out. BCN nurses vary but I am persistent. 

    If you have a good GP you can speak with them.  They will refer you back to the breast care service.

    We all feel at times anxious and it is hard to know where to turn to. All the support charities are good at being a sounding board. I believe it is always good to talk.

    All the best

    ricki