Received DCIS diagnosis low intermediate grade not invasive and so far through ultra sound not in lymph nodes.Due to area covered have to have a mastectomy with immediate reconstruction and told no need for Chemo . I am very fortunate they have found it early but it was confirmed on the 7 th May and operation will be in July …waiting is getting so hard worrying it will spread ..anyone tips for coping
Hi Pughdoll
You’ll hear it said repeatedly, but the waiting for things really is the worst part of all of this by far. Two things I found really helpful during the waiting game was using a journal which I wrote in every morning to get my feelings and worries out, sometimes I used it to rant and swear! The other thing I cannot recommend enough is exercise. If you are able to, try and get your body moving, it doesn’t matter how. This helps in so many ways as not only does it help divert your mind from thinking about cancer, but will also help you feel fitter and stronger in preparation for your surgery and recovery.
Best of luck with everything. x
Hey lovely,
I was in your shoes this time last year. I was diagnosed with DCIS in the May and didn’t have my mastectomy until the July!
I found those first couple weeks a bit of a blur like i couldn’t function initially. I would just lay on the sofa all day & cry. Soon though I found talking about it & being proactive in getting things organised for my surgery & after, helped me get my head around it all & I felt better. Your operation date will soon be here I promise.
Sending you the biggest hugs. Be kind to yourself xx
Something I found useful was a pillow wedge type thing from Amazon. It helped me sleep comfortably & stopped me having to lay so flat so getting up was easier.
I got lots of clothing that zipped or buttoned up the front. I treated myself to a nice new dressing gown & slippers for hospital too.
Also not sure about your hospital but my breast nurse gave me a little care package that included a little heart shaped cushion which i used up in my armpit for those first few days & at night whilst I healed.
hope this helps xx
Hi I've been diagnosed with Dsci low to intermediate from biopsy its on side of my breast ..in 2wks I'm having a lumpectomy I've been told that the tissue taken will be tested then if i need another lumpectomy or not .....I'm at my wits and frightened I'm a older single mum 13y I've fibromyalgia as well and if there is any advice be grateful. I was given a heart shaped cushion which made me cry as made it real .... I'm hoping your surgery will go well and you have good support system around you as I have unfortunately no one
Butterfly I just wanted to send you lots of love. I know exactly how frightened you feel. But wanted to tell you you will see light at the end of the tunnel before you know it & DCIS really is the better type of breast cancer to get (if there is such a thing) .
seek support, maybe check your local Maggie centre & be kind to yourself xx
Oh do they have centres thank you for replying I'm so scared my sister is picking me up staying 2dys then ill be alone with my dog and 13y I keep crying as don't know how ill manage driving housework shopping cooking with no help thank you for your help x
The one thing that helped me feel more in control was to prepare. I’d do some batch cooking so I had things ready to defrost & go, I got all my laundry & housework up to date. I made sure my cupboards were stocked up & had a good shop delivered when I got low. I would get things in place the best I could.
I had a mastectomy but it wasn’t long before I was driving. It was my left boob so the seat belt didn’t dig in too much. Plus I would use my little heart shaped cushion to give me a bit of protection.
What date in July do you have your op? Mine was at the end just as kids broke up for the summer so worked well. Your 13 year old might surprise you in being a big help when you need it.
Yes I believe there are Maggie Centre’s up and down the country (I think) I’m in Oxfordshire. They run lots of groups with women of all ages & at different stages. It might be good for you if you are feeling alone. I think some sessions might be online I’m not sure. Definitely ask your breast nurse as she will know xx
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