Hi, I’m currently going through chemo (just done my 4th of 6) after being diagnosed with GRADE 2 invasive ductal cancer after it was initially thought to be DCIS in April last year. I’ve had a mastectomy also.
I had been referred to genetics due to my age (44) . Yesterday I had the call to say I had the BRCA 2 gene mutation. I just feel like this is never ending cycle . Just as I am getting somewhere something else pops up!
Anyone been through this & have any advice or know what to expect going forward? The lady I spoke to said I will be referred back to the breast surgery team & to gynaecology as I can have my other breast removed & a hysterectomy.
I feel so tired of this all. I had been looking forward to the chemo being over & putting this behind me but looks like I’ve gotta keep going .
MRSB x
Hi MrsB23 , I haven’t got the BRCA gene mutation but I was positive for an ATM gene mutation. It carries a moderate risk for breast cancer so I have a higher chance of getting another breast cancer in my other breast. But it apparently doesn’t warrant any other treatment at this point.
There’s a separate group here which I joined while I was waiting for my test results. I’m not good at posting links but will check what it’s called. You could post in that group as well as here and it’s worth reading the threads there too. It’s not as ‘busy’ as this group but still worth a look. Love and hugs, HFxx
Hi again, it’s the BRCA Positive Forum on this site xx
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