invasive lobular breast cancer

Hi KatieUnkucky,

Sorry to hear your news. I was diagnosed with Lobular breast cancer July 2021 mine was much larger than yours with 3 Lymph nodes - I had mastectomy and lymph nodes removed on my right side . 

Had chemotherapy and Radiotherapy also all had CT scans and all clear . It was very tough but I am enjoying life . 

We are all here for you . Once the scans are over and you get a treatment plan everything will seem better . 

Be kind to yourself x 

Hi BT1 

Thank you for your reply. I am so happy that you are happy and healthy now. 

I don't know if more of my lymph nodes are with metastasis. All from sentinel  biopsy are. Oncologist said we will remove all of them to do further biopsy. If biopsy would came positive for all of them we would do scan to check extend of metastasis.

For me it sounded like very invasive diagnostic tool. 

In my logic - if biopsy after operation comes positive, I will have operation plus scan and chemotherapy.

If we will do scan first we have two outcomes -

• first is no distant  metastasis and we can go with operation on lymph nodes, and then decide which treatment is the best.
• second one - there is distant metastasis , we will start chemotherapy, which will target all, including lymph nodes - so operation removing lymph nodes can be avoided for now. 

My oncologist said that it is a bit outside the protocol, but she agreed with me. I am waiting for scan results but I have this gut feeling this will  be another bad news.

Problem is that I am facing all of this completely alone. It is my fault, I haven't met anyone who would want to be with me. I have no friends, my family is gone and I don't want to put any burden on my daughter. It is not her duty to be my therapist, she has her own life now.  

Hello, I’m really sorry to read this. I was diagnosed almost four year ago. My story is very similar to yours. Like you it seemed to get worse as it went on. I had a mastectomy and lymph node clearance at the same time, by choice, and then a second mastectomy later (by choice) on healthy tissue in the other breast. I had chemo for five months prior to surgery and 15 sessions of radiotherapy, and am on 10 years of Anastrazole. I had all the scans, and MRI’s. The fact that it was a mixed lobular and ductal beast cancer wasnt picked up until after the pathology report post- mastectomy, as they couldn’t see the lobular on MRI. I then had to have a full body CT, and bone scan to look for distant metastasis, but they were clear. 

I know what you mean by feeling alone, but people on this site help you feel less alone, especially at times like this. Stay with us xx