Invasive lobular newbie

Hi klf welcome to the forum.  Like you I was diagnosed with Invasive Lobular Breast Cancer, no lymph  nodes involved though they always take the sentinal node to check and I'm still creating mischief 6 years down the line. The MRI is just to give them a better look at the Cancer as Lobular does present differently to other Breast Cancers. Don't be surprised, based on this, that when they remove this is it is bigger then than could see on the Mammogram if that makes sense?. I then went on to have Radiotherapy and this is pretty painless although caring for your skin is a priority during and after treatment. Im  not going to lie to you it can be hard but one tip someone gave me and I say stick with it is dont think about the whole thing, just take a bit at a time and get through that, then move on to the next part, otherwise you will easily get overwhelmed. Please, whatever you do STAY OFF GOOGLE it is not specific enough and will scare the life out of you, often needlessly.

We are here for you as and when you need us to be so please keep in touch and let us know how you are doing. 

Hi Gail,  thank you so much, you've just made me cry, in a nice way.

Having never heard of lobular until Friday and now read too much about it, I was pretty down.

I have the Liz O' Riordan book, which tole me to expect it to be beiiger and the sentinel node test.

I'll update the thread after I have my MRI results .

I promise, I will stay off Google and stick to this and my BCN. 

Thank you again x

After my shock last week, things are moving .

I have an MRI Monday and an op booked next Friday.

Still talking about lumpectomy, I guess unless MRI shows something bad, which I'm half expecting..

I've been to work this week and told who needs to know - I only work part time but I'm tired .

Can anyone tell me how they check if it's spread ? I'm paranoid  about a pain on the same side as ILC but BCN says it will be nothing . 

Hi klf

Sorry to hear that you have been diagnosed with breast cancer.  They may give you contrast dye which shows up certain areas in the body to check for spread.

Best of luck with your MRI and your operation. 

Best wishes

Daisy53

Hi Daisy , yes it’s the contrast dye MRI .

Hope you’re doing okay. 

They’ll likely do a CT scan of chest abdomen and pelvis to look for spread. fingers crossed they don’t find any. I imagine they’ll do a sentinel nose biopsy to look for near lymph node spread when they operate. The MRI scan will determine if you can have a lumpectomy. Mine showed the tumour was much bigger than initially thought and a second shadow showed a second tumour. Generally you can have a lumpectomy if the tumour is less than 4cm. Fingers crossed for you xx

Hi Linda 

CT not mentioned .

Sentinel node , yes .

I’m expecting results to be worse than I have now , which is 1.5mm , no lymphs

The CT for me was after the MRI but both were pre op x

I’m going to ask , thanks 

My ct scan was post op and was checking to see if the cancer had spread.thankfully that is not the case.  Although I do have a lump under my arm which they have taken biopsies.  Am awaiting these results