Invasive lobular newbie

Thanks Janice , I hope your results are back soon 

Meeting on Monday with all the doctors.   Then they contact you over the next few days after that

Hi

I was diagnosed with grade 2 invasive lobular cancer + LCIS, 7 mm, ER/PR positive, HER2 negative November 2023.  This was in my right breast.

I found a lump and on my first appointment had a mammogram, then a ct scan where the lump was clear, a marker was put in place, a biopsy taken and concluded with a further mammogram.

Met with my consultant and BCN where my operation date was agreed with an MRI to be carried out to determine whether there was any spread and this was carried out using a dye.  The results were given with a further appointment with the radiographer consultant as two glands had  been detected on my left breast which needed some investigating.  They turned out to be mammary glands and no problem. 

I had surgery on 2nd January to remove the lump and all went well.  I had a aentinel node biopsy and the nodes were clear.

i am on Letrazole and I have just had my first of 5 radiotherapy sessions yesterday and conclude these on 20th March.

it is not easy waiting for results, wondering who to tell and when, but I cannot fault the NHS for the support and care that I have received.

You will be their focus and only when they have a clear picture that either confirms the initial diagnosis or adds some further work will they commence.

i wish you well and my thoughts are with you on this.

xx

Ty and all the best for your treatments too x

Thanks Cazza. I’m sure it will all come clear next week.

i contacted my BCN yesterday , she was pretty dismissive that I had a pain in same side as cancer. 

then I read today Macmillan are cutting 1 in 14 staff , which makes me wonder if she can’t be bothered . 

How does the Letrizole suit you ? I’ve been told Anastrazole.

Fingers crossed . Long weekend for you x 

Yes 

I’m shattered TBH . I’m lucky I have adult children , no one to look after x

I am thanks.

Hi klf. I've not been able to logon here for the last few days, so just got some help and have got in! I have lobular cancer, which didn't show up on ultrasound in October 23, but was eventually flagged up by a biopsy in January, diagnosis confirmed early February. Then I was sent for an MRI to see the extent of it, then a CT to check out some extra irrelevant things the MRI often shows up. I had a lumpectomy on 6th March. Results of that last Thursday indicate, thank goodness, that it hasn't spread to my lymph nodes and it's slow-growing ... but they need to take more out. So more surgery. If a further lumpectomy, then radiotherapy will definitely be recommended ... but I'm wondering, if I opt for a mastectomy, whether I could still have a good prognosis without radio ... I may start a separate thread on this!

Like you, my thoughts always rush straight to the worst possible outcome before reining in and telling myself things will likely be much better than that! And there's been a strange and unexpected positive outcome of having a cancer diagnosis - while terrified at times, a lot of the time I have just felt really calm, all my more minor anxieties (I am such a worriter) have melted away, and I've felt surrounded and buoyed up by love of friends and family, and even made several new friends! So it's not all bad news!

I hope you have good support, and that your anxious waiting time is over soon x

Hi BS, Thanks so much for your reply.

I've just checked in after going to M&S with my daughter to get some post op bras and button up pyjamas ( unsuccessful on the jama front but H&M have come up trumps). We had lunch and a mooch which was great to act "normal". I keep thinking, there will be a lady in here going through or gone through what I am.

  Good news about the lymph nodes and sorry you have to have another op.

I read that lumpectomy and radio therapy are as good as mastectomy , because I was thinking, why don't they just lob it all off?! 

I'm ashamed to say that I'm a terrible worrier, albeit a positive person but I'm struggling to be positive ATM. 

Just need to get this week over to see where I am really at .

I agree - it's goood to have ladies on here to sound off. I don't want to burden family.

Hope you get news about your 2nd surgey soon - can your BCN advise about treatment plan?
x