Where do I start….

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My friends, many of you would have seen my name pop up over the years, information in profile for any newer friends…

This week I had my last Zometa, bone juice, happy, relieved….moving on…5 years clear. 

Unfortunately my step mum….long story…not much older than me had recently had recall, some lump discovered, surgery….10 mm, lymph nodes clear. She’s been told she is having chemo…that it isn’t HR + but I don’t have many more details. She looks after my dad, in his 80s with a number of health concerns…basically she is his carer…but not old…if that makes sense. Does anyone have any idea on support….what happens during chemo?…I have a look at dwp etc… but as I’m not ‘the person’ it is hard to decipher. She is scared witless and doesn’t know who to call or what to say. 

Any ideas…pointers much appreciated. It is hard enough to have a step mum your age…never mind that she thinks that you can sort all the issues out. Obviously worried about my dad too…

Apologies for the data dump….

GGx

  • Hi  , yes you’re a familiar name on here! Sorry for your current family situation. I don’t know facts about what you’re asking but would suggest calling the helpline on this site as I’m sure they can give advice re support and benefits. Would you be able to phone with her there to answer questions? Am assuming she is too scared and overwhelmed to phone herself atm. What a difficult situation. Am sure others will pop in soon with advice. Will tag lovely  as she has dealt with all this in various forms from many different perspectives (hope you don’t mind dear  ). Love and hugs, HFxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Hello  , and I’m so glad I’ve been tagged by  , (thank you) although I can’t be of much help except to advise you to get your step mum to talk at length to her BCN. It might help her for you to go too if that’s possible (two heads are always better than one).

    I also think that PALS or a social worker attached to the breast unit  in her hospital might be able to help too as they should know about access to care for your father as and when it seems needed. She will need to be able to give details like national insurance number and income as well as details of the care she offers to your father. 

    Failing all that, ask if there’s a Macmillan unit in the hospital, they should be able to help too. I had a lot of help from a Macmillan finance adviser when dealing with my daughters problems, she was not long out of conservatoire and trying to build a career as a freelance musician when diagnosed, also buying a house, so there were financial problems more than care problems. 

    (HF is right in that I do know rather too much about cancer in my family)

    sending hugs xxx

    Moomy

  • Thank you to you both….I will investigate options at hospital. They are 4 hours away from me…but I’ve started a list of ideas re financial support and also things like sorted out food, meals etc. Having been through it all…I’m being careful not to frighten everyone but to make sure there is some sort of plan for the crap days…xx I’ll keep you posted! 

    GGx