Hello

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I am feeling rather negative today.  I was diagnosed with DCIS in July and had surgery which went very well, no pain and recovered well.  The results took 6 weeks to come through and I went to the appointment expecting to discuss radiotherapy only to be told that they had not manged to get a sufficient margin, which was bad enough, be even worse, I have stage 3 invasive ductal cancer which was not picked up by the biopsy.  I did not know that it was possible for something like that not to be picked up, so it was quite a shock.  I have recently had more surgery to try and get a wider margin and a lymph note biopsy.  I have now got to wait weeks and weeks to find out the results, and on bad days, I think that it is very unlikely that the cancer has not spread and that they still will not have managed to get a sufficient margin.  On the plus side, the staff in the hospital were fantastic, I could not fault anything about my overnight stay.  There is no pain and I am recovering well, but the problem is that I am signed off from work for 2 weeks so i have time to dwell on the situation.  I appreciate that there are people in a much worse position than me, but I cannot help feeling a bit despondent at times.

  • sorryyou have waited so long 6 weeks is a long time to wait to find out margins not clear. i had to do two surgeries for margins, second time clear, so don’t give up hope yet. i understand the disappointment, because its like im done, yay, nope not done. i will keep fingers crossed for lymph biopsy. i always say try not to cross bridges until you have to. there is time to stress us out later hugs

  • Hi JulieL77

    Welcome to the forum and I am sorry to hear that you were diagnosed with DCIS and that they didn't get a sufficient margin the first time.  I'm also sorry that you have to wait so long for the results from your second operation.  It's perfectly understandable that you feel despondent at times, it happens to us all from time to time.

    Wishing you the best of luck with the results from your second operation and hopefully they've gotten everything this time.

     Best wishes

    Daisy53

    Community Champion Badge

  • Thank you for your support.  Glad that they got your margins at the second attempt which shows that it is possible.

  • Thanks for your support.