Waiting times.

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Hi everyone I have been using this site for a couple of months now and find it helps me massively x just have a question which I am keen to gain further understanding, or is it just me.

I found my lump in April and biopsy taken after 2 week fast track, however, took nearly 7 weeks for results. When diagnosed with invasive ductal cancer grade 2 ER positive and HER2 neg on 30th June, I have had to wait for lumpectomy 13th September. Also had lymph node biopsies during surgery. My follow up is next Monday for results and I feel this is taking so long! 

A lady I know has also just been diagnosed and informed her surgery date following her MRI, and advised all should be completed and treatment plan arranged, within 2 months. 

I am not complaining at all in regards to the staff and NHS as I work for the NHS as a physiotherapist, and worried I will not have enough income coming in if it goes any longer. Has anyone else hadThinkinghis issue or did I wake up in the wrong side of the bed this morning! ThinkingHeart️xxx

  • Hi Palms

    I was diagnosed with breast cancer at the beginning of May and had surgery in the middle of that month.  I then had a four week wait for the results from that operation.  I had another operation at the beginning of September which I was waiting for for nearly three months and I'm still waiting for my results 5 weeks later.  I'm hoping to have them this week.

    Wishing you the best of luck with your operation.

    Best wishes

    Daisy53

    Community Champion Badge

  • Very similar here, called back from routine mammogram 7th June, had needle core biopsy, ultrasound and more mammograms, 2 week wait for results to be told they were inconclusive so had to wait 3 weeks to have vacuum assisted biopsy. This was followed by another 2 weeks for results, so basically told at the beginning of August that I have er, pr+ her- invasive lobular cancer. Put straight on tamoxifen and another 3 week wait for a mri and a further 2 weeks for follow up appointment for results of that, now booked in for lumpectomy 27th oct, the waiting in between appointments just seems so long, in my case from my first appointment to surgery will be just shy of 5 months

  • Hi  

    Sorry you have been diagnosed and for the delays.

    I had the same grade 2 ER+ and HER2 neg diagnosis (as well as lots of DCIS) and had a lumpectomy too.  Mine was over 6 years ago now. It sounds as if they took your sentinel lymph nodes during surgery and they hopefully find that there's no spread to those lymph nodes.  If they don't then actually you will find that work and income should be ok.

    I don't get paid if I don't work (self employed  - as well as a bookkeeper for construction so that would just be SSP), I actually was back at my self employed work on the Friday having had an 80mm lumpectomy on the Wednesday, I used the good arm for the strenuous bit and back driving by the Sunday so was able to be at my employed job on the Monday.  I might have taken more time had I been paid, lol.  

    As mine hadn't spread, there was no need for chemo. and I worked all through the 60 mile round journey to my radio appointments for 3 weeks too. 

    Some people struggle, some people are like me - very lucky with side effects etc.  I was also lucky with the side effects of the ER reducing tablets that I was on for 5 years, so fingers crossed you will be fine and be able to work no problem.

    I did find one time there was a delay in between something or other (can't quite recall now), but I think it was something to do with the day I had something done which was the same day the team met and then they didn't meet for another fortnight, then they have to book the appointment to see me; so it delayed it for quite a while.  I worked on the basis that no news is good news lol. I figured if it was really bad news they would be seeing me quickly as they would want to stop the spread further etc etc.  So their delays actually comforted me a bit. 

    Presumably as an NHS employee you'll be receiving full pay for a while yet, then a period of half pay? I am sure as an NHS employee they would be able to let you in and out of work as and when/if you feel that you are able?  And then it won't impact your time off work too much. Might be worth asking your HR dept. to see if they can assist with this maybe.

    Good luck for your results. 

    Lesley x

    Community Champion Badge

  • Thank you all for the replies x it appears we are all waiting quite a while for results and treatment plans, and I suppose with being anxious it makes that wait extra long! I’m keeping myself busy walking my dog every day which helps, and booked a holiday for June so fingers crossed nothing will prevent this from happening! 
    As soon as this is over I’ll be moaning about being back at work too, but will be nice to get sone normality back in my lift as well. Somedays I forget for a while and then realise why I’m off work, feels really strange as never been off sick, and you never know what is around the corner.

    stay safe all x x x