DCIS led to mastectomy

Hi new here

im Clare, 34 (35 this month) and I’m 12 days post mastectomy

may 8th I found a lump in left breast, went to doctors following day and was referred to breast clinic at Macclesfield hospital. Had my appointment there on may 26th, where I had nurses feel around and an ultrasound guided biopsy. 3 weeks later I was diagnosed with DCIS and sent for a mammogram. Another 3 week wait I was told I’ll be going down the surgery route but they needed more info as such. By this time I found out I was pregnant and had a decision to make, but nature made that decision for me a few weeks later. I had to go back 3 days after mammogram results for a X-ray guided biopsy mammogram and a 3D mammogram on right breast followed by another ultrasound this time on right something showed up on first mammogram for this, but turned out to be nothing. 2 weeks later I went for TOP to find out baby died 3-4 previously, local anaesthetic later everything was removed. Another appointment at breast clinic that week was told they’re performing a single, skin sparing, nipple sacrificing mastectomy as a preventative treatment as they had all they needed with sentinel node removal and expander reconstruction. breast surgeon said if lumpectomy was performed I’d have a massive dint in breast and she didn’t want to risk leaving even 1 cell behind, lump grew to 8cm by 6cm. Fast forward to this august 21st and I have my surgery. Everything went well. Saw breast surgeon following day to find out I had a reaction to the radioactive dye and she had never seen this before.

I am now waiting for results of removed tissue etc. if it’s cancer I’ll be waiting another 6 weeks to see if it’s genetic. All this while waiting to see a plastic surgeon for DIEP reconstruction. 

what can I say about the expander? So far all I can say is that it’s so uncomfortable but Im glad it’s not forever.