New hello

  • 2 replies
  • 480 subscribers
  • 352 views

Hi, I had a lump and pre cancerous cells removed along with some lymph nodes. At the time I was tild it was high grade DCIS. Today I went for my results. They got everything which is good but the pathologist says its now cancerous cells, they asked a second pathologists to be sure. They wrote in my booklet it was 25mm invasive carcinoma grade 3 0/2 lymph nodes triple negative. I'm due to go to see oncologist on 5th September to discuss radiotherapy and the possibility of chemotherapy. 

I'm happy they have cut it away but it's been lot to take in today and I'm still trying yo understand what the pathologist said. 

  • Hi there,

    Yes that does sound a lot to take in. It’s usual to be given a number of the breast care nurse team who would be able to talk through exactly what was said with you. They would give you time to digest the information and answer any questions. September 5th is a long time to wait I think.

    We could all offer a view probably on here of what exactly that means but really its best to come from a medical practitioner who has access to your notes so that you have the most accurate picture of how it is for you. When i got my diagnosis I found the breast care nurses really knowledgable and helpful - I really hope you were given their contact details.

    What I would say is stay away from google as lots of the info on there is outdated, and probably not relevant to your specific situation anyway. I drove myself mad with it at the beginning and it was wasted energy to be honest.

    Your team will come up with the best treatment plan for you and monitor you really closely. I have just finished 5 months of treatment and the care in my treatment centre (Leeds) has been really good.

    I have always taken someone with me to appointments even though usually I’m really independent about these kind of things. I have a friend who is always very ‘attention to detail’ and I take her as she remembers things I don’t.

    Hope this helps,

    Jan x

  • Hi there, it's not unusual for different things to be found after surgery, but sounds have no lymph nodes impacted, which is good. If you have questions and you can't get hold of your nurse, you can always give the lovely folks here at Macmillan a call on 0800 808 0000. Best wishes 

    Community Champion badge