Referred back to Breast Clinic nearly 9 years after diagnosis

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So I have just been referred back on fast track to the breast clinic, I was discharged 3 years ago and haven’t had any follow up since just before the pandemic as I had bilateral masectomy. I have developed a lesion in the flap area of my left reconstructed breast ( DIEP). My original diagnosis was breast cancer in the left breast, but due to high risk I had prophylactic masectomy on right breast at the same time. Lymph nodes were clear. I had some enlarged lymph nodes on my left side show up on an X-ray just prior to discharge and I was given a PET or CT scan (can’t remember which) and the report came back that they were just reactive lymph nodes, I am now panicking that the6 have missed something, like they did on my annual mammograms!

Is it possible that BC can come back and just look like a blister that has formed a scab? There is no pain or tenderness there, but some of the skin near it looks whiter and a bit sort of bubbly as if that might blister. My bras fit fine and do not rub and it is not in an area that would rub I.e not near a seam or edge, wire etc.

  • Hi hdsurvivor

    Welcome to the forum and sorry to,hear that you are facing a possible return of your breast cancer.

    Wishing you the best of luck with your appointment at the breast clinic.

    Best wishes

    Daisy53

    Community Champion Badge

  • Thanks Daisy53, my appointment is tomorrow and I am feeling quite panicky today, not helped by also have a post menopausal bleed, which I suspect is down to the stress.

    My mind is racing from I am making a fuss about nothing and wasting their time, to my DIEP flap failing and it needing removing to I have skin mets. The mind certainly plays tricks on us.

    I hope you are doing well.

  • Hello Hdsurvivor

    I am sorry to hear that you are going through all this worry. Good though that your appointment is tomorrow. I am sure that the rapid access clinic will get to the bottom of it and will be able to help you. I will be thinking of you and praying for the best for you. Let us know how things go.

    Sending big hugs

    Wallydug

  • Thank you  I am trying to keep busy and stay calm this morning, easier said than done, my stomach is churning with all the worry.

    I’ll let you know how I get on.

  • I have just got back from the breast clinic and they think it is fat necrosis, but they took a biopsy as a precaution and I get those results next Thursday. Feeling a lot calmer now.

  • Hello hdsurvivor

    I am so glad that it seems to be a benign cause and good that they will confirm their provisional diagnosis with biopsies. I hope that you get more good news next week.

    All the best

    Wallydug