Sleepless in Sheffield

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Hi I’m new to the group and this is my first post. I’ve been browsing for a few weeks, and thought I’d take the plunge and introduce myself.

I found my lump by accident, as my breast was a little sore, but not sure if I had knocked it picking up my 20 month old Granddaughter or with my 1 year old pup jumping up at me.

After discovering the lump, I contacted my gp, who put me on a fast track appointment for a mammogram and ultrasound. 

I was diagnosed in February with a grade 3 triple negative tumor, and had WLE and SNB at the beginning of March. Luckily they are quite confident that they have got everything, and there is no spread to the lymph nodes.

I have been quite positive, and keeping myself distracted with family and friends. My husband has been brilliant, and we’ve had a couple of weekends away and even a couple of date nights that may have ended up with us drunkenly dancing around the kitchen Joy

I saw my oncologist yesterday, and I think that’s when it finally hit me, that this thing is not over by a long shot. Don’t get me wrong I was told I would be having chemo and radiotherapy, but I think I pushed it to the back of my mind. I should be starting treatment in the next couple of weeks.

So here I am reading my leaflets and googling wig shops at 3 in the morning Weary

  • Good morning and oh dear - that early morning racing mind is just the worst.

    Greetings from Leeds - just a little further north than you. I also have triple negative grade 3 and am having chemo before surgery. I have had 3 rounds of EC and moving to 9 weeks of weekly Paclitaxel/carboplatin later this month. My experience with the chemo so far has not been too bad - tired and spaced out at times but no other tangible side effects so everyone is different. You jut have to listen to your body and go with the flow - alongside holding on to that this is a time that will pass.

    I am using the cold cap and so far have retained my hair - not sure where your treatment is going to be? Sheffield? Or maybe even Leeds? But it’s worth discussing with the breast care nurse. Also, again not sure about Sheffield, but in Leeds there is a free wig service supported I think by Macmillan - another thing to ask the breast care nurse about.

    You sound like a positive person so you will pull out all your strength to get through this and we are here beside you.

    Happy to answer any questions being that little bit further down the line.

    Janx