Invasive Lobular Breast Cancer Grade 2 Er Positive

Hi, sorry to hear you've been diagnosed - but well done for trusting your instincts!  I'm not in the initial stages, but was diagnosed with lobular BC at end of last year and currently going through chemo.  Hang in there - it does get easier.  I've had a mastectomy and immediate recon, then full axillary node clearance, chemo and then ?radiotherapy and hormone tablets for 10 years.  Feeling much better now I'm getting treatment - the waiting for results was the worst thing about this whole journey for me.  Sounds like your team are on it and you are getting good care already.  Good luck x

Hello there.

I too have recently been diagnosed with grade 2 invasive Lobular breast cancer which is HER2 positive (have no idea what that means really).  I'm waiting on a gene blood test as they think I have the mutational gene and have my MRI scan soon.  I think my treatment plan will be more confirmed then.  Luckily I was able to get a G.P appointment cause it is hard these days to get one.  I initially called as thought I had an infection in my breast then my nipple went weird and thought that's not normal then before I know it here we are.  Best wishes

I was diagnosed beginning March grade 2 multifocal ER+ HER2- after finding a lump in my left boob. My gp & surgeon both told me they felt it was nothing to worry about but because of my family history Aunt, Sister & niece all BC they would follow up.

I had a mammogram which showed nothing, an u/s that flagged 4 areas and core biopsy of 2 which confirmed cancer.

MDT meeting wanted to wait for full biopsy results before deciding on further imaging which was an MRI with contrast.

I now know I have no choice its a mastectomy but I do have to decide if and why reconstruction I want.

I am with surgeon on Wednesday. I actually want to ask about a double mastectomy. 

Hi Kez ni sorry to hear about your diagnosis. It is a big decision for you, but I’m sure you will get some good advice from members here and your macmillan nurse and surgeon. Sending you best wishes

Hello and sorry to hear of your diagnoses. I was diagnosed with invasive lobular bc in Jan after finding a lump having a mammogram then an MRI and ultrasound. Mine was multi focal ER+ PR + HER2- grade 2 - I’ve since had a mastectomy and diep reconstruction nearly 5 weeks ago. I asked about a double mastectomy but was told they don’t remove healthy tissue. I’m now awaiting the results of the sentinel node biopsy which they removed during the breast surgery. As others have said the waiting and not knowing is horrible. One minute I’m ok and positive the next I’m in pieces. I’ve just turned 46.

Hi humble, sorry about your diagnosis, the waiting is the worse, glad they did your surgery, I to am waiting for sentinel results after lumpectomy, my diagnosis is triple negative for hormones and The journey seems so long at this stage, waiting for treatment plan, hope you’re healing well, up and down days to be expected, sometimes I feel really all over the place emotionally.  Trying to keep positive 

Humble, thank you for your reply. Waiting is torture and for every answer there’s another question. 
None of my diseases showed up in the mammogram I guess thankfully because of my family history they decided to use ultrasound as well. How has your recovery been? Are you having radiation, chemo or hormone therapy?

I’m sorry you had to find your way here too x

Hi - sorry to hear this. I was diagnosed 3 weeks ago with the exact same, also didn’t show on mammogram or ultrasound. My MRI is on Friday. 

Hi Samara and hello to everyone else too. Sorry to hear of your diagnosis Samara - it’s such a shock to receive the devastating news and joining the club nobody wants to be a member of  its one of those things you think will never happen to you but here we all are. We’ll get through this xxx