Newly diagnosed

Sorry to hear about your diagnosis, I found this group really helpful and when I had the results of what type of BC I joined the triple negative group for more information. My Macmillan nurse has be really good answering questions and keeping me informed. It is a shock and takes a little while to sink in, I hope you have family support as well.

Hi Millsey, thank you for your reply. I do have good family support but I have also found it really difficult to say the words to tell them. I am trying not to put myself under pressure to do so until I feel a bit more steady on my feet. I have a rare type of BC (mucinous?) but been told my prognosis should thankfully be good. I’m still waiting for some of the pathology results to come back so will have more information about full treatment plan once they do. I think knowing about that will help me.

I hope you are doing well X

Hi Rosie12

I also have just found out I have breast cancer, I completely understand how you feel. I just joined this group yesterday hoping it might help. 
I was diagnosed just under two weeks ago and have since had an mri and trackers put in place. I will find out on Tuesday the plan of action which will consist of an operation and chemotherapy. 
One minute I’m feeling positive and the next fearing the worst. 
Im sorry I don’t feel like I’m much help apart from completely understanding what you’re going through x

Hi Rosie sorry to read of your diagnosis , I was diagnosed June 2022 ,  60mm e+ tumour and put on Letrozole  and it’s difficult dealing with family I think as I didn’t want them worrying about me and then having to explain to my employer but in the end the support is needed and  some of us are lucky we have this I think , I managed to stay in work until my surgery 30th  Nov 22  which I’m so glad I did as ! and have been off since and now on 3rd round of chemo ,  Staying positive really does help as hard as it can be , tell yourself how strong you are and be prepared for lots of appointments and be kind to yourself , rest is good , getting out walking is good , coming on here for tips and advice for specific things that crop up along your journey really helps in this forum and helps you feel you not alone especially when you start treatment ,  I started doing a bit of art /drawing /painting  while on chemo really helps me relax so I’ve found having a hobby really helps passing time and relaxing my mind ,  I think as time goes on  you can get lots of good advice on here as and when needed also Maggie centres and Breast care nurses are brill , good luck and lots of virtual love and hugs to you xx

Hi Cazza25

Thank you for reaching out. It does help to hear from others in a similar situation as I know you understand. I’m so sorry to hear you are also dealing with this though. I’m glad you now have a treatment plan. I hope that gives you some sense of control, and of course I wish you all the very best for Tuesday. 
I only got diagnosed on Thursday so TBH I think I’m still a bit in shock. I’m having an MRI on Wednesday to check it hasn’t gone anywhere else in the breasts. I will be glad once I know about that. X 

Hi Lousie69, It’s good to hear from you, thank you for replying. I hope you are doing well now and coping OK with your chemo?

That all sounds like good advice, and I know I am blessed to have family and friends to draw on. I told my parents yesterday and that was very hard as like you, I was worried about the impact on them.

I also want to keep on working while I can as I think it will be a good distraction for me. I’m a bit worried about losing it in front of colleagues and clients though as I’ve been a bit of an emotional mess since I found out. I hope that will settle down a bit as it all sinks in and I get a bit more information.

Sending you a virtual hug too, take care of yourself. X

Hi Rosie I remember that awful tight throat of emotion trying to control the feeling of sadness, worried about those we love, so take your time, hope your results are soon, I found the waiting worse Surgery for me on Wednesday beginning of the treatment

Hi Rosie, I was diagnosed on 10th February, grade 2 spread to lymph nodes so mastectomy booked for 23rd of this month. I try to stay upbeat and positive and joke, but sometimes it is really hard and I get days where I feel so down. It is on my mind 24/7 even if I'm doing something it's there gnawing away in my head. We had a holiday to the States planned which we were looking forward to, obviously can't go  so I feel my life is on hold. I'm very nervous the closer the operation gets but I want it done. I started keeping a journal to write down how I'm feeling, it sometimes helps to get it down on paper talking to people is good too, although some can be a bit tactless. ! Hope you are feeling OK, keep us posted on how you're doing. Sending hugs xxxx

Thanks Rosie , the chemo has been harsh but each cycle a little better and get more meds for side effects which really help , I defo had a few meltdowns in work but colleagues very supportive and I could take time out if felt too much  (I work with special need children so couldn’t continue  while in treatment ) can’t wait to be well enough to return I miss the social side so much too ! Take care too xx

Sorry to hear about your diagnosis. How I coped? A. Slept a lot, felt like my life was over etc. as others will say: it’s ok to feel like crap, everyone does. B. Continued with my daily stuff. C. Went to sleep with meditation videos. D. Listened to audiobooks 24/7 when awake. Still do. Stops my mind from thinking about cancer. Have gone through a looooad of Agatha Christie -free stuff from YouTube.

Hope that helps. First weeks after diagnosis are the hardest mentally. Hang in there and best of luck ️