Feeling soooo tired

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Hi I am a newbie

Almost 2 weeks ago I got the results of my biopsies and I have DCIS and invasive breast cancer in my right breast. The area is 65mmx 33mm. The cancer is hormone responsive and I have decided on LICAP procedure followed by radiotherapy and in my head I thought right ok then it is done and dusted and I can move on.  

On Thursday I got my HER2 result which is positive and I was told by the BCN that i would likely need a drug called Herceptin and chemo. This, I had not factored into my very simple plan of cancer treatment!  My case went back to the MDT and they have decided to still do the operation first then chemo, then radiotherapy. I am now beginning to realise that this is going to take longer than I had first thought. I had read somewhere that HER2 positive cancer tends to be more aggressive but I am not sure if that is right. 

Generally, I am quite positive because I have been assured it has been caught early and they are treating it to cure it. Like most people, my family has a lot going on at the moment and this has come from the left field. When I was first invited to have a routine mammogram as part of the breast screening programme, it never entered my head that this would happen. I am soooooo tired at the moment which I think is my response to stress and I am wondering if anyone else felt this way when they were first diagnosed …… exhausted. 

  • I have 2 lumps in left boob one is being fed by her2 positive the other by oestrogen I’m haveing 6 chemos with target therapy for the her2 into my thigh then a lumpectomy I just take each day as it comes and not worry too much I’m ok ish I’ve lost my hair and had the horrible taste buds but it’s partly of the journey to recovery I was tired the first week after my first chemo and had little cat naps along with walks and plenty of fluids try not to get yourself too stressed over it 

  • I know it takes over inevitably, it has to have all your attention but then to work out how to continue living with this knowledge. Put yourself through all the hoops, help others to understand and stay sane. Physical activity and being outside when possible helps me normally. I can't do the normal things as much. 

    2 mths post surgery, lumpectomy and full node clearance. Oncotype DX says I don't need chemo. Radiotherapy and Letrozole is enough for me at this age (66) don't tell anyone. First realised something had invaded the breast in Oct. It was seeing the dimple that really clarified it for me. Basically I choose to go along with everything, my son who is Autistic needs me on his team. I want to dance again, do what I worked for all those years. F..k it, it's my life and I'm going to have fun and be free again. Some days I obvs don't feel so upbeat. I'm working in my spiritual connection. I aim to dance in Brighton Pride in the Parade again. It was my first time last year. Embrace the new, just get through the treatment first and slowly emerge like a butterfly. XxxxxxX

  • Thank you for your message meandm, it is just what I needed to get me going and a reminder to take each day at a time. I am going to focus on the things that I like to do and that I find calming. 

    Good luck on your journey and thank you again.  

  • Carry on as normal the best you can, go outside and   enjoy the fresh air in all weathers and have walks, eat well and drink plenty, it’s so much better than sitting in pondering over what’s to be, the what ifs and what’s to come, things  that we don’t know about, only what we make up in our heads or read on google (which is always the worst case scenario) , we have to go on this journey to come out on the other side well again, be positive and stay strong and we will get thru this together xx take care x

  • Hi   welcome to the forum we know you’d rather not be here but it is the best place for support and answers from people who have been where you are at the minute .

    Firstly can I just say most of us have found that the waiting is the worse time .Once you have plan and start treatment it feels better because you can get on with kicking some butt Joy 

    Distraction is the name of the game I had the tidiest cupboards ever and a freezer full of prepared meals .

    Have a read of my bio on profile where you’ll find details of my treatment .Just click on my name to get to it . 
    At first it felt like forever to be told over three years of treatment because of HER2+ but it passes far quicker than you’ll believe and worth it to reduce risk of recurrence .

    Any questions feel free to ask we are all willing to help and support 

    take care 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • Thank you Sabrina22. Your message if support really means a lot. Funnily enough I went on a really long dog walk yesterday and I felt a bit more energised. I have booked myself onto a yoga class which I haven’t done since covid. Being proactive is definitely helping. 

    Thanks again for reaching out and good luck on your journey. 

  • Dear Margaret

    Yes, the waiting is definitely the worst part! It was good to read your story as it is similar to how my journey has started. All I can say is thank goodness for breast screening!!!! 

    I am so glad I reached out on this forum as it has given me a boost and made me realise I am not alone Heart I am very grateful. ️

  • We all do our best and I think this experience itself is energy sapping. Just the thought of it itself. I'm on Letrozole and have read about people's comments and fatigue. I'm going to have to fake it at times for the sake of my son. His Autism and Epilepsy makes him vulnerable. 

    Sometimes I go to the gym or dancing and feel exhausted after but at least I have achieved something for myself. The day after my op I walked with the dog and went to the garden centre. Mad maybe but I just felt so relieved, maybe the drugs were still in me as well. I worked so hard to get to retirement, im not giving in now. I can get low just like anyone and work hard on positive thoughts and contact the right people to bring me up. I know quite a few who have survived breat cancer. XxxxxxxX Stronger together. 

  • Hi, sorry to hear you need chemo on top of everything else, that's a pain, but as others have said, totally do-able. Herceptin by the way, is usually given by injection these days and causes minimums side effects for most people. I had a similar diagnosis to you 2 years ago although I had chemo before surgery.  Walking certainly helped me feel less tired.  If you want to check out my blog, which I wrote throughout, have a look here. It helped me to write it and others have found it useful.  Best wishes.    Cancer blog

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  • Hi Sabrina

    My journey is like yours just finished my last radiotherapy session a week ago but my left breast and arm are swollen and got the burning sensation  am using E45 cream  but been told this is normal lits of sleepless nightsxx