Hi there, I am fairly new to this site and have found some posts really helpful. I have completed 6 rounds of chemotherapy, docetaxil, carboplatin and phesgo, I had surgery before Christmas but have now been told I need 14 cycles of Kadcyla along with anti hormone meds for 10 years and 6 monthly bone infusions. I am struggling to follow some of the threads due to the use of acronyms. Worked out BCN for breast care nurse but have failed with EC and others. Can anyone shed some light please. Mimosa x
Megan- Macmillan I wonder if the MacMillan team could provide an acronyms list somewhere in the online community? I've had a look and couldn't see a lot like this, but love the idea as I also struggle sometimes.
Mimosa your treatment seems similar to mine, I'm 18 months into the 10 years of letrozole and have had 3 bone infusions, hope you're doing ok. EC is another type of chemo. RT is another one, that's radiotherapy. Best wishes
I struggle with some acronyms too. Like you, I can figure out what some mean. I Google the ones I can't and found EC is the initials of the two chemo drugs used in combination with each other.
Best wishes
Thank you for your reply. My oncologist has given me prescription for Anastrizole I assume they do the same thing, she thought this one has less side effects than the other 2 options. Have you had any problems?
Hi Mimosa.
EC is epirubicin and cyclophosphamide a chemo drug.
You can Google the acronyms and go to the breast cancer now org or the Macmillan website and it will tell you what they are.
Hope that helps.
Hugs from cuffcake x x x x x
Hi, my bones occasionally get a bit stiff, especially my knees, but never to the extent that it stops me doing anything. And if I walk enough then this is not noticeable. Other than that I have been very lucky. Best wishes
Hi Irishgirl16
So sorry for the delayed reply, I have just logged back onto the Community and have been catching up with my notifications.
Sometimes medical professionals like to use different acronyms so we don’t have a set list we can share. We do however have some information about different terminology and staging in the Breast cancer booklet which may be useful. Our booklets and information pages on the Macmillan website have common acronyms in brackets to help you navigate the information.
Community members are very welcome to ask questions about staging and acronyms in our Ask a Nurse section which is open from Monday to Friday.
If it would be helpful, we could also look at sharing something here on the Community. We could start a thread for members to add the acronyms they have come across and the Community team can put them together in a list.
Do let us know if this would be helpful
We have now set up this discussion thread which I hope will be helpful. I'm sure members will soon share the acronyms they have come across and please do reply to the thread if there's anything you wish to add to the list.
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