Wanting to connect

• Hi Poppycoco  well done for getting through the chemo!! I am at the beginning of the process, still waiting for my HER2 result before I find out what my plan is. The times I’ve asked questions the responses have been great, so I’m sure you will get some helpful ones.

Hi Poppycoco little baby steps always. I'm similar to Bea_me waiting for Oncotype DX to come back. You are already getting better. I think the brain shuts down at times when in difficulties. I just did the Headwrappers session. I dread losing my hair, it's been so hard holding onto it. I want to have a life again even at times during this process. Danced outside yesterday. Look after yourself, rest and take your time. The MacMillan Nurses on here are great at answering any difficult questions. Xxx

Hi Bea, thanks for your message, I hope you get your results and plan soon.  It makes it easier I think when you have a plan.  I feel so relieved now it's over and you will too - keep asking your questions and get support xx

Hi Sabrina22 thanks for your encouragement.  May I ask what is the headwaters session? I tried with a paxman cold cap which was fine during the paclitaxel and carbonation weeklies, bit couldn't tolete it during EC so went for the shave - it was quite liberating actually, I felt I was making a choice about my own own body for the first time in a while.  Hope you get your plan soon too, keep dancingg  

Hi Poppycoco,

Headwrappers give an online service to help people with hair loss due to chemo for breast cancer. I joined a private member's group on FB and I found out about it through them. I emailed them my details and they sent a free pack with a scarf and turban. They did an hour session on zoom of how to tie them and gave advice. It was an amazing uplifting session . I'm still waiting to find out if I need chemo. I expect I'll lose hair anyway, I was using some scalp treatment from a Trichologist which I can't use now. It has oestrogen in it. 

It's just one of many issues we face. Adapting is constant, reading others posts is very informative. I hope to keep dancing, but just wonder if I'll have the energy when I am through this. Also if I'll recognise myself. I'll have to work harder with make up and exercise maybe. Hope you are feeling better each day. Xxx

If it’s any consolation don’t worry about your hair- lost mine, husband shaved the balance off. It has grown back thicker and stronger than ever - also curly!, xx

There's a general chitchat thread called AWAKE.  Been running years so just got to last post, say hi and you'll have a very warm welcome.  The ladies con there may have finished, just started or in middle of treatment.  Click on posters names to see their profile.  There's no silly question to ask, they're no feeling that's not valid.  xx