LCIS - I feel a little alone

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Hi everyone 

I’m 39 and was diagnosed with LCIS in 2017. Since then I have had 1 lumpectomy in 2017 to remove a Fibroadenoma and a Vacuum Biopsy to remove a lump and a clip inserted in 2020 both in my left breast. I have yearly mammograms, my last one being May 2022. 

BRCA testing was mentioned and I was referred to genetics in 2020 but as I am adopted and have little to no information on my biological family, they said they couldn’t proceed further. 

Last week I have found another lump in my left breast. I have been referred to the breast clinic and am waiting for an appointment. The doctor asked about BRCA testing, I explained what has happened previously and she is trying to push for it. Has anyone else been in this situation? My twin sister has had ovarian pre cancerous cells removed and it worries me if we have this gene we wouldn’t know. 

The fact I keep finding lumps is getting me down. Due to the LCIS I do push for a referral however how many do I need to find? 

I haven’t been offered hormonal therapy, should I be pushing for that? 

If anyone can share their experiences I would really appreciate it. 

thank you x 

  • Sorry they didn’t let you get tested, it doesn’t sound fair!!!

    I don’t know much at all about one side of my family due to a parent being from another country and where they had no access to medical care till the 1980s. My gran died very very young but no diagnosis- could’ve been cancer. 

    I was offered the test and I took part. My result was negative. 

    I hope they let you take part and that your test result is negative.