1st chemo

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Hello I’m new to this group, so hello to all. I’m Karen and I’m 53. Just gonna tell u my story. I felt a lump in my breast end of June but wasn’t too sure if it was. I went on holiday a day later for a week. When I got back it was still there. I attended my mammogram on 1st August then also had a ultrasound the same day. Radiologist then took a biopsy of my tumour and lymph node and put in metal clips. 2 weeks layers 12th August I got my results it was cancer and it doesn’t appear to have gone to lymph nodes. 
I still don’t know the name of my tumour but I do know it’s not the common one. I am ER negative, PR 5/8 pos and HER-2 negative. Grade 3 and stage 1/2. I had my very 1st chemo on 1st September and also my picc line put in. I have to tell you all I was dreading the PICC line and omg it was absolutely fine so please don’t be worried about that and it saves having needles every week. I first chemo was absolutely fine too and I still feel ok now. I’m having chemo called Paclitaxel weekly for 12 weeks then EC every 2 weeks 4 doses then surgery then radiotherapy   

You may think I appear to to be very calm writing this and yes I have calmed down a lot. When I got my results and got home I sobbed, lost control a bit didn’t eat didn’t sleep was on the macmillan 24 hr line constantly. I was convinced this was the end of me, made a MASSIVE HUGH mistake and looked on the internet which sent me thinking there was nothing down for me.

After speaking to my oncologist I feel so positive now and haven’t looked on internet. 
obviously I’m still scared and now I’m just waiting to feel ill from chemo which by the may not happen. I will defo lose my hair but in the great scheme of things this is last on my list. 
The best advice I can give is listen to your Oncologist as they have the knowledge about the cancer and will tell you everything you need to know eg if it’s early stages etc  

God bless you all xxxxxx

  • Hi Maria (my Mums name) love it. Must admit reading your story and you having EC and feeling not so good for just 2 days sounds promising for me. I’ve only had 2 Paclitaxel up to now and I feel ok. I am so scared of the EC though, I just have a feeling I’m going to be so Ill over Christmas and my Mum and kids are gonna be upset. I don’t understand why some people have lumpectomy/mastectomy first and I’m not. Most people on here seem to  have op first then EC then Paclitaxe then radiotherapy. Maria can I ask if ok by you how big was your tumour and had it gone into lymph nodes? Also what type of BC is please. 
    You sound like a positive person and I’m trying too to be positive, just still get very scared. Bless you xxx

    Karen x

  • Hi Karen Heart exclamation

    Well Frist thought it was stage 2 now turns out it was stage 3  here is my letter and if anyone else can tell.me as a five year old I appreciate it! 

    Tbh Karen we have to get though this and we will  x

    m),N3a,M0 left breast multifocal grade 3 left invasive ductal carcinoma.
    Initial wide local excision and axillary node clearance 20/06/22- 27mm (ER 8, PR2, HER2 1+ negative) and >5cm (ER8, PR4, HER2 1+ negative) invasive tumour with extensive lymphovascular invasion. Positive margins.
    11/17 lymph nodes (1/1 intramammary, 10/12 L1+L2 nodes, 0/3 L3 nodes)
    Completion mastectomy 28/07/22 - additional 16mm invasive cancer.
     
    Treatment: For adjuvant chemotherapy accelerated EC x4 + accelerated Paclitaxel x4.
    For adjuvant radiotherapy to left chest wall + supraclavicular fossa + internal mammary chain.
     
  • Hi Maria, wow I don’t understand most of that but the bits I can pick out that are similar to me is I also have invasive ductal carcinoma and mine is 28mm but that’s about it.

    You’re so right though we will get through this because we have to 

    Best of luck and hope treatment isn’t too bad

    Karen xxxxxxxxxx