1st chemo

Hi, 

I am sorry you find yourself here but a warm welcome to the group. 

My own journey is slightly different to yours but same grade and treatment although I had EC first. It is totally doable and from the jist of your introduction you are a positive person and will take this one step at a time, this is all we can do really xx

I have cold capped and lost a lot of  hair on EC but it did start to grow on PC. There are some great wigs on SHEIN, especially  given the price and you should be given one on NHS if wigs are a route you choose. I got a couple of great satin lined beanies from Amazon which where my go to when my hair was too thin to go without something. 

Good luck with your treatment, drink lots and listen to your body xxx

Hi, thank you for replying to my post. Do you mind if I ask you where you’re up to with your chemo? Have you finished yours yet?

thank you for letting me know the places I can buy wigs and the satin lined beanies I like the sound of. I’m going to have a look now. 

I’ll be back on with an update each week xxxxx

Hi I’ve just read your 1st post and see you you haveTNBC. The hospital considered treating me for this as so close but for some reason they are not and I was told if I want the brca testing then I will have to go private and pay for it. I think after all the treatment I might do this as it’s about £500 but I have a daughter who is 23 and my Son is 20. Have you had this test done? X

Hi, 

I was 48 when diagnosed and was given the Gene testing, which thankfully came back negative, I have 2 daughters. 

I am due to have my last Chemo on Thursday, YAY!! following this I will have an MRI, operation, Lumpectomy or Mastectomy depending on my Chemo response then Radiotherapy. I will have completed 4 rounds of 3 weekly EC and 12 x weekly Pac/Carb. It’s not been easy but you can and will do it. 

xx

Oh wow your last one on Thursday. It’s only my 2nd one on Thursday, but as you said I can do this. You’ve done it so it gives me hope I can do this too. It seems like I’m having the same treatment as you.  What size was your tumour please and had it spread to your lymph nodes when they did the biopsy? If my questions are upsetting you I won’t be offended if you don’t reply. I’m just scared and I’m hanging off every word you say xxxxxx

Morning, 

I don’t mind questioning at all, it helps to feel part of a bigger support group. 

My tumor measured 32mm at initial diagnosis, they don’t think lymph nodes are involved but will remove a couple when I have my op to confirm. So finger crossed for that anxious wait. 

I had an MRI after 2 EC cycles ( think this was early as my oncologist ordered it but think I got appointment sooner than she expected) my Tumor had shrunk to 13mm at that stage. To be honest I felt changes in the lump after about 2 weeks of starting treatment and was scared it was growing but the Chemo was doing it’s stuff. I could not feel it after 4 cycles. 

EC was harder than PC BUT still very doable, ( I might add you have longer recovery time with EC and only really had a couple of off days before starting to feel better) drink lots, rest lots and give yourself time and patience. I found walking regularly helped too, both for mind and body. 

We are all here for similar reasons and it’s fine to be scared and anxious but hold on to hope and try to fine a positive in every day, it goes a long way.

x 

I'm 52 diagnosed with stage 2  BC in April I've had a right masectomy in May and 8 cm tumour removed.

I just had my 2nd EC chemo and I won't lie it's been tough I've had all side effects.I am allergic to everything.

I have another 2 EC and Three docetaxel then radiotherapy and hormone therapy.

I think to myself am I going to make this? Cause I will keep fighting.It makes it easier to know others are going through the same journey.

Take care 

AJ

Wow it shrunk to 13mm that’s so promising coz at the moment that is all I’m praying for is that the chemo shrinks mine but I’m having PC first then EC. Did you ever feel that your cancer was spreading because every twinge i feel in my armpit I think that’s not good omg I hope that’s not spreading. So next will be your surgery after your last chemo on Thursday. Let me know what they say please and best of luck but I think you’ll be just fine xxxxx

Hi AJM so sorry to hear your side effects are awful. Im having a chemo called piclitaxel every week for 12 weeks then EC every 2 weeks (4 doses) then surgery then radiotherapy. I’ve only had 1 chemo but I have heard the EC is a lot stronger and may be a lot worse.  I am ready for it because I keep thinking just 4 I can do this, let’s face it we have to. You poor thing, all I can suggest is drink loads of water and tell your chemo nurse how awful you feel.  As this is very early days for me I don’t have the knowledge or experience to suggest anything else. I hope,your last two sessions go better for you my love xxxx

Hi Karen

I'm Maria 52 found lump.in.march  had lumps out then margins poor so had mastectomy left breast in 28.7.22. was told needed chemotherapy treatment that did make me cry  and also radiotherapy. I have done one eC last Wednesday and it was better than I thought it be o did have few tears when I went into the unit bit settled down .I was bit out if it  Wednesday Thursy feel ok Friday eben had cheeky glass of red and glass of white tonight.. I finished steroids today so I guess for this and following cycles I see thanks for sharing your story x