Hello -from KT

Hi K-Dragon21

Yes. I understand where you are at the moment. I can only say I'm sorry to hear your news and here's a big hug from me.

My journey started in late January this year with biopsy of lump and lymph nodes. 2 weeks later/First meeting came back with lymph being clear but lump cancerous. Two/three weeks later came CT scan and results came back with cancer had spread to lungs. (The biopsy of the node missed the cancerous bit). Classed as Stage 4, incurable but treatable. I'm still in the early stages of treatment and still trying to find my feet and what this all means to me.

There is another forum that may help called 'Living with incurable cancer' forum. I find both of these help. You cans ask specifics on Breast Cancer on this forum, but sometimes the other forum can help too. They are both unique and the people on them will help and support you in anyway they can. 

I'm not a touchy/feely type person so my need for emotional support is limited. I have odd days or moments when reality hits me. I accept however I feel on any given day or moment and it's screw everyone else. If I sound angry I probably am, but I have always been a fighter. I make no compromise about my life. I learn to adapt and adopt so I can do what I want. If that means going slower then so be it.

How you feel will change over time. Processing this news doesn't happen overnight. Take your time. You will have been assigned a McMillan Breast Cancer nurse. Talk to them and find out how they can help. 

If you have questions don't hesitate to reach out.

You are not alone!

Sledge x

Hi K.Dragon21  I am so sorry to hear about your diagnosis.  I had breast cancer 12 years ago and had lumpectory, chemo, radiotherapy and tamoxifen/letrazole, I was 47.  Last year went to doctor with back and hip pain and they said I had arthritis.  Turns out I have stage 4 metastatic breast cancer with mets in pelvis, spine, ribs and skull.  It is such a huge shock and it takes ages to process.  I am not sure that I have fully accepted it yet.  Like Sledge said (hi Sledge) it is treatable not curable.  The Living with incurable cancer - patients only is a brilliant forum as everyone is in the same boat and you can be supported by people who understand, it helps me tremendously.  The treatments are evolving all the time and new treatments coming out.  I am sending you a massive hug.  We are here if your want to chat.

Lee x

Thank you so much xxxxx

xxx

Hello Sledge, Thank you for your lovely message and hope you ok (silly question.) Your message really helped and supported me. I live on my own and have moved in with my elderly parents now during chemo, Feel terrible inflicting this on them, I have always been fit, healthy and independent which makes this worse. Start chemo on Monday and am scared every thing I eat after wards will make me ill! Have been meaning to message before but find the website a bit difficult to navigate on my phone. Today got to have a neck scan, and pelvic ultrasound to check out further (minor problems) shown on CT scan - this time an ovarian cyst, Have endometriosis so prob that. Had heart scan yesterday and a spine in liver MRI, At this moment numb- other times just in despair.

Thinking of you and sending hugs,

K

Hi Lee, Thanks for lovely message - hope you ok (silly question.) I’m very low at moment and anxious re starting chemo on Monday …. Had lots of tests this week, scared about food making me ill while on the treatment…. Always been very anxious. Sending lots of love and hugs xxx

Hi K

It's good to hear your ok. Moving in with your parents is not a bad thing. When you face the unknown you need to know you have people you can face at some of the bad moments. New stuff is always a little scary. Just remember that you will be monitored through out the first session to make sure that there are no issues. Some of the side effects don't happen for a few days.

Don't worry about what food you can eat. Try a littleal.t a time until you are confident. I would stay away from strong spicy food until you are sure what appeals though. The upside for me was I couldn't stand eating sweet things. But the downside is I can't eat spicy. Cornflakes are my go to when I should have something. 

I understand the challenge of the phone as i use it to. I can also understand the concerns of complex medical issues. None of it makes it easy. Just take time to process it. My latest is I have cancer spread to lungs and this week have been advised it is also in the brain which means I can't drive. I may never. Like you I also have a heart condition. I have yet to have another in-depth CT scan across the body, so I have no idea what news I will face. 

It's ok to feel scared or despair but until you go through treatment is difficult to know where you stand. Look for the positives. Believe me there are some, but some people may not appreciate it. It's not for them, it's for you.

Take heart. You are never alone.

Sending my love and hugs 

Sledge x