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I hope I can manage this as I am a self confessed technophobe!

I had a mastectomy just over two weeks ago. I'm still waiting for a couple of test results to come through. I think they said they were markers. I've found the breast nurses less than helpful. So I don't feel I can talk to them.

  • I'm struggling with the fact I've lost a breast, which has surprised me somewhat as I'm usually a very practical person. But I can't bear my husband to look at me. I'm guessing this will pass as I come to accept things.
  • Hi Marynora,

    So sorry that you find yourself in here having had surgery and that your breast care nurses have not been helpful.

    The Macmillan helpline is able to provide support and direct you to their nursing team, it may be worth giving them a ring.

    Sending hugs and wishing you all the best for your recovery

  • Big hugs and remember this is a journey, not a sprint, so don't give yourself too hard a time.

    When I was first diagnosed with DCIS, i was horrified at the thought that I may lose a breast. Although i'm not faced with that decision right now, i feel differently about it as the most important thing to me is preservation of life - this wasn't how I felt at the beginning.

    I still felt hugely emotional and have days when i'm ok with it, and days when i'm not. I did a lot of reading, and also reading of others experiences on here, which helped. I also kept a diary so I could articulate my thoughts, however daft they feel, somewhere - which has helped. It also helps when i read back and realise i'm having a good day, which i also record in my diary to remind me of them. 

    Can you share how you feel with your husband so he can go on the journey with you? You may find you get some laughs with it too, I know we did.

    Take care