Secondary breast cancer

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Hi all, first forgive me if this is all over the place…….
I was diagnosed with DCIS in October last year, had removal and a week of radiotherapy. Lymph nodes were clear and was given the all clear. In march I got covid, and was suffering chest pains 4 weeks after negative test. Went to A&E and was told there were spots on my lungs. After bloods and CT I was told my breast cancer had spread to my lungs and bones!!! Not curable, but manageable!!! Treatment started very quickly, I’m just lost. I realise that I have to wait to see if treatment is slowing the rapid rate that it is growing, but I’m all over the place, the feeling of not knowing anything is stressing me out!! Telling people is the worst, I can’t answer questions, I feel fine, I look fine, I don’t feel ill, is this normal?
thank you for reading to the end

JB xx

Hel39 over 3 years ago

Im so very sorry…what an awful shock. This disease is so unpredictable. What treatment have they put you on? I think there is a secondaries board where people may know more about these things and I think it often can be managed for a quite a long time these days. There really are new drugs all the time- recently trodelvy, enhertu has is showing promise for low HER2 expression, olaprib etc xx

sending love xx

kateandbiz over 3 years ago

Hi, I have secondary cancer in my bones. I won't go into the 3 years since I was diagnosed, but I will say that my most recent blood test showed my tumour markers are down a bit (at last!!) so at the moment I am not on chemotherapy and am feeling pretty good. I also look fine.

What treatment are you on? I have an injection once a month of a bone strengthening drug and take Calcium and Vitamin D (on prescription). I have been on chemotherapy, having a respite from it now and hoping I won't need to have it again for as long as possible. Been prescribed letrozole too although ER is low.

CT scan in July, and blood test then see oncologist in August. so as long as I continue to feel reasonably well I can relax for a bit.

When I was diagnosed with secondary cancer my treatment started really quickly too. Had an MRI on the Monday afternoon, and on the Tuesday morning the GP was on the phone telling me to come and see him straight away. A phone call to my breast care nurse to tell her the news resulted in a very quick appointment being made and I found myself back in the system of scans, biopsies, blood tests and medication.

It is manageable, but just not curable. There are people with secondary cancer who have been stable for years. I'm hoping to be one of them!!!

Daisy53 over 3 years ago

Hi JB22

Welcome to the forum and sorry to hear that you have been diagnosed with Secondary breast cancer. There is a Secondary breast cancer group that you can also join if you want. Here's the link to it: Secondary breast cancer forum.

It's perfectly understandable that you feel lost, it's rotten to be told that you have secondary breast cancer after been given the all clear just a few short months ago.

Wishing you the best of luck with your treatment.

Best wishes

Daisy53

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