Triple Negative Breast Cancer

  • 7 replies
  • 476 subscribers
  • 576 views

Hi

I have posted previously, this is an update on my situation. I had the results of my PET scan yesterday and my liver is clear. But there is something on my spine, in particular T12, which they want to check out before treatment so I have to go for another MRI! I’m absolutely distraught. I thought I was just waiting to see if my liver was clear now I have to wait for more results. I know these things take time but it’s so frustrating and distressing. I worried sick again. Is it common? Would it be in one particular area in my spine and nowhere else? Has anyone else been through this? I just don’t know what to think! 

X

  • I am so sorry this is happening to you Tootsweet. It is my impression, rightly or wrongly, that it is unusual to only find one area affected on the spine, with nothing in any other areas, so it could be a false alarm. I am sorry you are waiting for your MRI and hope it all turns out to be a red herring and that you can just get on with your treatment. Try not to worry and distract yourself as much as you can.  lots of others  on this support group that have things flagged up on scans that turn out to be nothing in the end, but do cause a lot of worry in the waiting period for scans and results. Hang in there xxx

  • I really hope it is a false alarm. I’m just so anxious, I want to start treatment to get rid of this thing. Just don’t know how it all works.

  • I feel for u, im still waiting for my mammogram  results, had it on Saturday,  it does seem like it takes forever, especially  when it's constantly  on your mind, im triple negative BC, still don't know if spread, I know how you feel, just want to get on with it, worried , as its still growing, hopefully  they will get it sorted for u soon xx

  • Not mammogram,  MRI I'm waiting for x

  • Hi T00t5weet

    I know how you feel. I posted yesterday about my bone scan showing up something in my knee area. I had a CT scan of chest and pelvis and then a bone scan for whole body. Because of this abnormality, I got sent for an x ray of my knee yesterday and I am waiting for results(again). The bone scan showed up lower spine and left hip as degeneration but what is up with my knee as I don't have pain in it. I am worried although other posters have said it would be unusual to have mets in a knee. It just seems like worrying every time something is asked for. Been over 5 weeks since my diagnosis now. I think I would be less stressed if they were finished investigations, cancer was confined to breast and nodes and got on with it. I try (sometimes unsuccessfully) to tell myself that thigs do show up on scans that are not cancer.

    My thoughts are with you. Hope it is something else and harmless.

    Stripey x

  • Hi

    Yes all of these scans/investigations take so long, or that’s what it feels like, it’s a very anxious time when you are just waiting for results. You just want to get on with treatment.

    I guess lots of different things can show up on these scans so it’s best to get everything checked then they know the best route to take treatment wise, they are the experts after all. I hope you get your scan results very soon and everything goes well.

    Take care.

    x

  • Yes it totally consumes you. It’s always there from the moment you open your eyes on a morning until the moment you close them at night. Hopefully we’ll get our results soon and we can get on with treatment as soon as possible. We will get through this. Hope everything goes well for you.

    x