Pagets Disease

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Hi 

I saw specialist yesterday who told me my nipple biopsy had come back positive for Pagets disease. Mammogram, ultrasound of breast and lymph all looking clear. Now waiting for an MRI with contrast to determine if cancer is in the ducts. 

Has anyone else been diagnosed/been through treatment for this?

I'm feeling quite calm about it all at the moment. The main worry for me is telling family, especially my daughter, without her freaking out and worrying too much. 

  • Hello tawnowl. Telling family is a topic that has come up on the forum on many occasions. Normally I'd say wait until you have enough information to be able to answer questions, but it would depend on circumstances, such as is your daughter an adult who lives elsewhere, or is she a school-age child who lives with you and may be witnessing something that is already giving her the idea something is wrong. It would help a lot if you are calm when you break the news. I think Macmillan has some publications on how to deal with family, and I hear their nurses are great at giving advice, you can call the helpline and talk to them, see if they have good pointers for you.

  • Hi, sorry to hear of your diagnosis and I can empathise with the challenge of how to tell family. I have an adult daughter who lives about 3 hours away and with her I took the approach of telling her everything as soon as I knew it.  We are very close and I didn't want her to ever think I was hiding things from her.  With my mum however, I waited until I had some concrete news on prognosis and treatment so that I didn't have her in the same state of uncertainty I was in.

    I think there is no right or wrong way to do this and it's,about what you feel most comfortable (in a very uncomfortable situation) doing. Good luck 

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  • I told my daughter today and was very open about what I know so far. Went as well as could be expected. 

    Sadly I lost my mum to bowel cancer 18 years ago so haven't had to face that. 

  • Hi, sorry you lost your mum. And I’m glad your discussion with your daughter went ok 

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