Newly Joined

Hi.

I've has 6 cycles of chemo. It's not easy but you do get through it . I didn't have hallucinations but found my mood low after chemo but it did pick up after a week or so.  They may need to adjust your steroid dose or chemo dose to get it right for you so maybe next time it won't be so bad.

I found I  just needed to go with and rest let family and friends help. 

Did you get clearance after your second op.  I have a second op in 3 weeks having had chemo in inbetween

Xx

Thanks for the reply! Yes, they said it was clear the second time around, and the lymph nodes they took were clear as well. Massive relief! I can't imagine going through surgery as well as chemo at the same time, I feel for you. Did you find they get any easier with each session?

I've been a bit brighter today, less low than I had been, so hoping I've turned a corner. I know a lot of others have gone through a lot more than I have, but I think I'm just beginning to realise how overwhelming it's starting to feel. Hoping they can sort out the steriod effects, as vivid hallucinations are not something I want to experience when already feeling low! I only really take paracetamol, so I think my body is just having a rough time adjusting to the chemical overload. Wasn't expecting to feel so bad so soon... They'd told me the second lot of chemo (docetaxel I think) tend to have more effect, so it's scaring me a bit, the thought of going through all this five more times.

I wouldn't say it got particularly easier but I found I managed it better as time went on and you get used to the drug regimen. I had 3 EC and 3 doxactexel . Found they are just different side effects but not particularly worse . The first week/ ten days are not good but I found o was okay for the rest of the cycles 

Xx

That's what I'll be getting. I felt better yesterday later on, and even managed a short walk today. Got a couple of niggles just now mind you! Hope for the best for you going forward

1. Hi I'm sorry you are going through this nightmare, for weeks I thought it was a nightmare but every day I woke up it was still there and real.I was diagnosed on 2nd February and my best friend who i love more like the daughter I never had was diagnosed with cancer about 7 days after me... she lost her dad last year and her mum has terminal cancer she is only 40 we were hoping to have surgery the same day so we could sneak out for a vape together  at the moment I just want to wrap her up in a blanket and look after her  

I found the chemo ok. The docetaxyl wasn’t worse for me just made me more tired than the EC xx

I'm sorry you're both going through this, hopefully you can spend some time healing together. I'm definitely better than I was last week, was really struggling with a low mood but feel more like myself today 

Hmfm, they'd told me that the docetaxyl would be when my hair would go, and I'd feel more tired, but it really caught me out from this first one. I'm hoping now I know what to expect, I can handle it better. Although they'll need to look at the steroids and adjust them, as I apparently they'd caused most of my issues