Lobular breast cancer diagnosis this week

FormerMember
FormerMember
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Hi 

on Wednesday afternoon I was diagnosed with lobular breast cancer I’m 49 with a loving husband two adult daughters and a lot of brilliant friends around me ,

but I feel so alone totally numb and really scared of what’s to come … diagnosed weds afternoon sent for MRI yesterday, the nurse gave me a lot of information to read but it’s overwhelming to be honest , I go back this weds 16th March for follow up from MRI  to receive the news of stage grade and treatment , 

just wondering if anyone can advise 

  • Hi there, sorry to hear of your diagnosis.  I think this early time is really the hardest and the most scary, certainly it was for me.  I found it got easier when all the initial tests were done and I had a treatment plan and I know many people find the same.   What worked for me in those early days was keeping busy and distracted and please, do not be tempted to Google anything but stick to reputable sites like Macmillan.  I hope things become easier for you when you get your treatment plan this week.  Good luck 

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  • Hi I was diagnosed with lobular breast cancer last June. It was an unbelievably scary time and I found myself trying to be positive and only look towards the next appointment- no further.

    Im now finished with active treatment having had a lumpectomy in August, chemo from October to February and I've just completed radiotherapy.

    It has gone by so quickly. Once I had my surgery date and then met with the oncologist, I felt so much better knowing there was a plan in place. 

    Im now looking back to resuming work in April. You WILL get through this. xx

  • Hi Louisejohn,

    Sorry you find yourself here. It’s really hard , I felt just the same when I was diagnosed . There’s such a lot to take in and get your head around and no one around you can really understand what we go through. That’s why this site is such a godsend as lots of people can offer advice and support as they have been or are going through the same thing so can totally relate to how you are feeling . 
    I too have lobular breast cancer . It was missed on my mammograms as lobular cancer presents different to other cancer and doesn’t always form a lump so is harder to detect. 
    I’m in active treatment at the moment, and I can tell you that once you get a treatment plan in place you will feel much better. It’s amazing we get through it but we do . I have been through every emotion possible  from being strong and positive to a total wreck and back .

    it does get easier, waiting for results ect is the worst but once you have a plan you feel much better .

    if you click on my profile you can read my journey so far.

    Sending you big hugs .

  • Hi I was diagnosed with Lobular breast cancer last June, had a lumpectomy and then MRI as they misdiagnosed it as ductal, I had 2 lymph nodes positive so I had to have them all removed. I think I’m still a bit numb to be honest and I haven’t really processed what’s happened. It’s only natural to be scared, it took me at least 2 weeks to even pick up any of the information I was given, I just couldn’t take it in, I also felt very alone, although I wasn’t, you just can’t describe the way you feel unless the other person has gone through it.

    Sending