Hi I’m newly diagnosed

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Hi I’m 46 and have been diagnosed with Paget’s disease plus invasive ductal  carcinoma and positive for ER, PR and HER2. 

I have had biopsies, bloods and MRI done, just got to wait now for 3 weeks till I can get a CT scan done, which I feel is a long time to wait because then it will need to be reviewed then another MDT before being passed over to Oncology, with a view to starting Chemo and Anti-HER2 treatment. Then surgery for a Mastectomy.

If it wasn’t for having a sore leaky nipple I would not have known about the invasive ductal carcinoma as no lump was felt by anyone yet it’s throughout my breast. 

My worries at the moment is the smelly discharge from my nipple as I’m afraid that during all this time before surgery it will become infected and may lead to sepsis, I’m changing my dressings every few day and taking time to clean the area, I’m hoping once I start chemo it will settle down a bit. 

Thanks for reading, my head is a shed at the moment, I’m usually a very positive person but this is all that consumes my thoughts through out the day and night.